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Long distance caregiver

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Lynettep
Lynettep Member Posts: 2
First Comment
Member
in Caring Long Distance
I am trying to care for my eldest brother who was diagnosed with dementia and June of 2024. And right now it's May 5th of 2025. And it has escalated so quickly I mean the progression of it has really taken off like a wildfire. I live in Tennessee he lives in Ohio and I'm constantly racing to Ohio check on him to make sure he's okay he never had any children of his own. But he had children that he loved and taught school for 40 years of his life always giving gracious loving and kind person I just couldn't understand why something like this what happened to him. I've been angry about it but now that the anger is no longer I am just so freaking sad and I feel overwhelmed

Comments

  • cdgbdr
    cdgbdr Member Posts: 181
    100 Comments 25 Likes 25 Care Reactions First Anniversary
    Member

    So sorry about your brother. Is he living in a safe place? Still at home? It's such a huge worry. I'm in Ohio and might be able to help direct to resources if you need that.

  • Lynettep
    Lynettep Member Posts: 2
    First Comment
    Member

    Hi cdgbdr, thanks for reaching out yes right now my brother is in a rehab facility for now. But hopefully we will be getting him into a assisted living soon

  • JENNIFERFRANTZ
    JENNIFERFRANTZ Member Posts: 1
    First Comment
    Member
    I’m so sorry you’re going through this. It’s new territory for many of us. There are so many mixed emotions- I find it difficult to know if I’m making the right decision. This situation is consuming- there are many sleepless nights worrying about our loved ones. During the day there are constant phone calls. It’s a burden. I wish you the best.
  • eaglemom
    eaglemom Member Posts: 816
    Legacy Membership 250 Likes 500 Comments 100 Care Reactions
    Member

    Yours doing good by helping your brother. He might not say it or even realize it, but it does take a toll on you. I would suggest you contact local ALZ Chapters to see if they offer any support groups - in person or virtual - that you could attend. It is always good to be support with others whom are on the same journey.

    eagle

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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