Have any questions about how to use the community? Check out the Help Discussion.

Caregiving

Never in my life did I ever think that I would be a caregiver to a person with VD with a heart failure diagnosis. Some days I think I can get through it and then other days I question whether or not I am failing and needing to go to the nut house myself. I feel I am living a nightmare that just won't end, and I have no clue how long this will go on or if I will end up dying before him. I am trying to care for myself, but the demands are still working a full-time stressful job is an extreme challenge. I can't afford to retire yet. I still have 2 years to go. He has limited resources, and I am doing my best to keep him home for as long as I can. Has anyone else been able to keep their LO at home so they can pass peacefully at home? Or does everyone end up sending them to a MC facility? He just doesn't have the resources for $110-$115K per year. I am just lost and don't know what to do.

Comments

  • SusanB-dil
    SusanB-dil Member Posts: 1,413
    1000 Comments 250 Likes 100 Care Reactions Third Anniversary
    Member

    Hi and welcome. Maybe check on adult daycare for a few days a week? Caregiver burnout is real, and you cannot continue the pace.

    Some memory care centers will give what is called respite care for a week or two.

    As is said - must get the oxygen mask on yourself first.

  • Whyzit2
    Whyzit2 Member Posts: 85
    100 Care Reactions 100 Likes 25 Insightfuls Reactions 10 Comments
    Member

    have you considered having him evaluated for hospice care? If he qualifies he may get services that

    Would help with bathing etc. which has relieved me of some of the caregiving duties.


    (((hugs))) I understand and appreciate what you’re going through.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more