Permanent catheter with dementia



I’m a caregiver for my mother. She has early onset dementia that she’s had for about 10 years. She does fairly but has a lot of other health issues. One of those being she has issues with her bladder. Her urologist is wanting to put in a catheter that would stay in all the time. I’ve never had any experience with a catheter and I’m not sure what to expect for her. Her neurologist states this could make her dementia worse or for her. But in a lot of ways, we won’t have a choice she will eventually have to do this. I’m just looking for on how to handle this how hard this could be and how to make it easier for her. I want my mom to have the best life she can and the best quality she can for as long as possible, and I’m scared the catheter will take a lot of that away. On top of the dementia and the bladder issues, she has other health issues that make life hard for her. She’s bad knees, kidney issues, and a few other health concerns that just complicate the matter. She never complains and always stays in good spirits. We are blessed with how well she does and how well she’s handled everything. I’m just afraid this will be the tip of the iceberg for her and me. Thank you.
Comments
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It's going to be tough either way. With the catheter, she may pull on it or not give it proper care, causing injury and/or infection. Without the catheter, she may be at risk of kidney damage and/or skin breakdown, depending on why she needs the catheter.
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I just searched and found this: “ A permanent urinary catheter (indwelling catheter) is generally not recommended for dementia patients. While they may be helpful in certain situations, the risks associated with them, such as increased risk of infection, and the potential for self-extraction due to confusion, often outweigh the benefits.” Hope this helps. I know it’s a difficult decision. Anesthesia is very hard on people with dementia. It may cause a decline. She may or may not return to baseline.
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We ended up putting one in but I’m really worried about her with it. I think it’s going to take a lot of her independence away. The only other option is for me to do one where I basically drain her at least twice a day. Her bladder doesn’t work and she can’t empty her bladder really anymore and the doctor doesn’t want it to back up into her kidneys. I’m scarred off both of these it puts so much on me and I want to do what’s best for her. I’m not sure I can do the other one either. I’m having a really hard with these changes. She’s unsure about it all too
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My DH had a catheter for about 18 months. I was concert first but it was not too difficult for me to empty regularly. Of course, I am with him 24/7. If you're not living with your mom full time it would more difficult.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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