Executive functions


my DW has lost a lot of her executive functions. It is my care responsibilities to take care of all decisions. She sometimes demands to know what is going on and i try to explain even though she won’t remember. I use DARE everyday as much as i can and also redirect, but it is a struggle. DARE is Do not ARGUE,REACT or ENGAGE.
Comments
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I try and fail often.
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We got into an elevator the other day in a 2 story building. I’m standing there and she is looking at the buttons. She say “where is 3?” I say why do you want to go to 3? She says”we need to go to the button and leave”. I say “there is no 3”. She says “ I know, where is it?” I said “push the 1, it’s the bottom floor. She says “OH”
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My DW has bascially lost her short term memory so like most all of us on this list….The best we can do is all we can do - You have my sympathy, understanding and best wishes for what comes ahead.
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Absolutely a struggle and I fail at least once most days, but that means I’ve succeeded a lot. I try to give myself a break when fail, because I’m just a poor ole human doing her best.
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We all do the best we can with what we have to work with. Once in a while when we turn out the lights at night, DW will say "thank you I had a good day today". I treasure those nights.
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My husband will often want to know what’s going on, even though he will forget shortly. Most often I fib. I don’t want to say anything that can cause stress or have him hyper focus. I’m careful making appts in front of him. An example is our insurance notified me that our homeowners insurance is increasing (a lot) and I need to make an appt to discuss. I cannot tell my husband about any of this. So I will make an appt at a time when I am running errands. It’s a balancing act and often stressful for me. I shoulder all worried alone and that’s not an easy task.
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Thank you Steven. I am quite possibly a little too excited to read your post re: DARE.
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@trottingslong
It’s a lot for me to take care of two adults. The morning routine of getting my DH bathed, potty, dressed and fed is sometimes all I have the energy for. He can no longer shoulder any of the burdens of the house, car, family, himself - it pretty much all falls on me. Then there’s all the laundry, cooking, cleaning, yard work, you name it. No wonder I’m exhausted all the time. He can’t stand/walk, so I transfer him with a hoyer lift. That gets exhausting by the end of the day too. Weekends are the worst, especially the three day ones as his CNA only helps during the week. I’m blessed to have CNA help through the county, couldn’t manage without it.
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Me too…:(
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my DW doctor and our attorney says i am doing what i can and should be doing right now. They say i am only human and they worry about me. Thanks to all who responded. I try and fail often and i treasure the good nights hit the mark. I have a 1 day a week care team member for 4 hours t help bathe, excerise, etc. for now. I know more will be needed later.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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