DH home from respite care

marier · June 13

Dh is to return home today from a 10 day respite stay at a great place . I am having conflicting feelings and thoughts. I am at some level looking forward to having him at home again and then I wish he could just stay at this memory care place. It is a great place. He participating in all the activities they have and seems to be really enjoying himself vs coming home and having limited things to do. I also have really enjoyed his time away and I am not anxious to get back to the routine of a caregiver. I will stay calm and carry on until the next respite visit time. I just needed to vent about the conflicting feelings.

Chris20cm · June 13

What a wonderful gift for you, as a dedicated caregiver, to have ten days to yourself. It's been nearly ten years since I have had a vacation from caregiving. To have 10 days of solitude and personally meaningful activities without resistance or having to explain, would feel like I had died and gone to heaven! 😊

JDancer · June 13

My spouse recently spent 5 days in respite care, before being discharged from hospice for being "too good." It was my first break in 5 years and it was heavenly. He did have a period of adjustment afterwards. More frequent bowel/bladder accidents as he got back into our home routine.

ladyzetta · June 13

It was nice you had some time to yourself, caregivers really need and deserve any time they can fine. Just think how well he adjusted to the facility. Now when you need time for yourself you will be able to get some. Also when and if the time comes to place him, it will be easier. Take care of yourself. Hugs Zetta

Jgirl57 · June 14

Thanks for sharing your vent . Let us know how the adjustment back to home goes for both of you. I recently put a deposit down for a 2 week respite in September.

Dio · June 14

Placement was my salvation! I had to deal with a lot of guilt, but it's nothing compared to wishing God would take one of us. You'll know when it's time for placement.

tonyac2 · June 15

I wish I could find a place that would care for my DH for one week. All of them want at least two weeks to a month. It’s not like I have the cash for one week, let alone one month. I desperately need a break from him. In the mean time this disease is eating up every last cent we have. Totally feel trapped at times, it’s awful.

jehjeh · June 15

I, too, would love to get away but i also have to watch the finances. Caregiver comes two afternoons a week but I still can't get far from home. DH thinks Medicare is covering this care but, in reality, I'm paying out of pocket. Since we can't know how long this will go on, and I will eventually have to add more care, possibly even a move to MC one day, spending money now is terrifying. I need to make sure there's enough for the long haul, plus enough to support me. (I'm younger than DH and need to plan for many years ahead of me) I try not to worry about things I have no control over but I really wish there were more options available for caregivers.

DH home from respite care

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