Who can I trust?




Hello all, it's been a while. My bf (46yo EOA) is a very active stage 7b. He is still mobile. We have entered the stage of not wanting to shower but I can get him in there (not fighting l, yelling or scratching tonight). Here is my predicament.
I have been trying to find an Adult Foster Home but there aren't many around. I do have a meeting with one next weekend who is 45 minutes away. She has a max of 3 clients so my bf would be number 3. I have such anxiety when leaving him with someone I dont know. I know that no one will take care of him like I do. But I ma TIRED. I just turned 40 and am really contemplating my life. I still want to be a mom someday (yes I know it won't be with my bf). I want to spend my forever with somebody.
Sorry got off track. Back on .... haha.
If the AFH is a good fit do I have him live there until end of life? With having constant anxiety of are they treating, feeding, cleaning him as they should?
--- OR ---
Do I see if his biological Mom (who hasn't been in and out of his life since he was an infant. Her sister (bfs aunt) is who raised him and who he knows as "mama" has her own issues going on). I haven't approached her (which is why I am here) to see if she would either.
1. Take him on and be paid the hours but i still manage his finances, and keep current dual POA.
2. See if she will do an alternating 2 weeks with him. I know it would be confusing maybe but I dont jnow what else to do.
I am physically and emotionally EXHAUSTED. I want to have a life. Don't get me wrong I do love him so much I just need help.
Thanks for the advice.
We are all in this together 💜
Comments
-
From how your question reads to me, it seems he has gotten to stage 7 while these family members remain minimally involved. It seems like a lot to expect them to take on any serious care responsibility at this point.
If you have the opportunity to get him in the care of professionals, that is the route I would pursue. I have the same hesitation as you do about strangers. However I am often very impressed with how such people have been able to provide effective care for my DW. I have had some amazing experiences with the care strangers have provided my DW. Family members can often carry emotionally histories with PWD that can interfere with effective care giving, where as paid professionals do not.
When I originally contemplated placement, it was with the idea that DW would be placed once, until the end. I have since learned that is an ideal goal, but often not realistic. Do you best to get him somewhere so that you can get your life in order, but understand circumstances may change such that he may need to go somewhere else. Focus more on flexibility rather than perfection.
7 -
I would place him in the care home. Ask questions about if he becomes bedridden can they still care for him. Will hospice be allowed to go there to assist? If you are young and tired, I don’t see how his Mom or Aunt who are older would be physically able to care for him at all. Remember this decision is for him, not to him. You will still have caregiver responsibilities unless you get the court to assign a guardian.
3 -
Considering your age and his stage of illness, placement would be the best for you both. Because of his younger age, he could still live for a considerable time. You are only 40, with dreams of your own, like having a child. Take a good hard look at what you are sacrificing by remaining his primary caregiver. Placement doesn’t mean you are giving up or that you don’t still love and care for him. It means the time has come where he can be cared for 24/7 by skilled people and it can provide you with time. Sometimes we feel we are doing what’s best for them because in our minds no one can care for them like us. The flip side of that is sometimes we aren’t willing to relinquish control, for whatever reason. Listen to the song by Glen Campbell, I’m not going to miss you that he wrote and sang to his wife as his dementia rapidly progressed. Heartbreaking but true.
7 -
Oh my gosh that song broke me last night but gave me so much perspective. Thank you.
2 -
I think he would agree that you deserve a life. The placement you are planning sounds rather amazing to me and sounds like it is being done out of kindness and love.
xoxo
2 -
I'm not gonna miss you by Glen Campbell brought tears to my eyes
1
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more
Categories
- All Categories
- 528 Living With Alzheimer's or Dementia
- 270 I Am Living With Alzheimer's or Other Dementia
- 258 I Am Living With Younger Onset Alzheimer's
- 15.6K Supporting Someone Living with Dementia
- 5.4K I Am a Caregiver (General Topics)
- 7.5K Caring For a Spouse or Partner
- 2.3K Caring for a Parent
- 199 Caring Long Distance
- 121 Supporting Those Who Have Lost Someone
- 15 Discusiones en Español
- 5 Vivir con Alzheimer u Otra Demencia
- 4 Vivo con Alzheimer u Otra Demencia
- 1 Vivo con Alzheimer de Inicio Más Joven
- 10 Prestación de Cuidado
- 2 Soy Cuidador (Temas Generales)
- 7 Cuidar de un Padre
- 22 ALZConnected Resources
- View Discussions For People Living with Dementia
- View Discussions for Caregivers
- Discusiones en Español
- Browse All Discussions
- Dementia Resources
- 6 Account Assistance
- 16 Help