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I'm at then end of my rope as a caregiver.

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my 93 year old mother was diagnosed with ALZ dementia 11 years ago (2014). she's required 24-7 care for the past 8 years. her illness has been advanced since 2017. i am the primary caregiver at her home.

the past few months have been awful. her occasional threats and refusal to co-operate have become almost routine. threats of horrific violence (cutting off caregivers' genitals…burning down the f***ing house etc.) slapping and scratching her caregivers. refusing to let us change her diaper. refusing to let us give her a shower. throwing plates of food at the table. yelling and screaming F bombs so all the neighbors can hear. getting her in and out of bed is a daily ordeal. she's on seroquel but it doesn't help much. often she'll refuse any meds. the stress and anxiety is overwhelming. I have home health aides in daily. she treats them worse than her own children. they can't do much other than some basic house cleaning.

she was an amazing woman, mother and wife. that is gone forever.

every day i wake up, i hope she passes peacefully in her sleep. but she just keeps going.

i hate this disease.

thanks for listening to me vent. misery loves company.

Comments

  • ladyzetta
    ladyzetta Member Posts: 1,205
    Eighth Anniversary 1000 Comments 100 Likes 25 Care Reactions
    Member
    edited June 23

    Scarfire. I'm sorry your going through this with your mother. Things will get worse with this deaese. If I was you I would look into placement. She's not meaning to be this way, it's just the deaese, she needs to be in a place where everyone will be safe. Take care of yourself. Hugs Zetta

  • eaglemom
    eaglemom Member Posts: 809
    Legacy Membership 250 Likes 500 Comments 100 Care Reactions
    Member

    I am so sorry. This is no way anyone wants to remember their mother. I would agree placement might be something to look into. However, I think you need to reach out to the physician who prescribed her seroquel and explain the situation. Maybe a medication addition or change might help in this situation.

    eagle

  • vtech1951
    vtech1951 Member Posts: 20
    10 Comments First Anniversary 5 Care Reactions
    Member

    We are in the EXACT same boat as you,, I will post an update next week

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more