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Moving mom this week

I am moving my mom to memory care this week and it is causing an extreme amount of anxiety. She lives with my brother who does not give her the care she needs and who is not on board with this decision at all. I cannot take care of her full time so although she is at about a 2 (I would say 3) caregiving level, I have decided to move her. Just need some people other than just my family to tell me I'm making the right decision and some advice for getting through it.

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  • H1235
    H1235 Member Posts: 1,109
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    Welcome. I went through a very similar situation. My mom lived with my brother who was absolutely clueless to her needs. The move was a disaster. My brother insisted mom should pack and bring what she wants. She brought cook books(there was no stove) cupcake wrappers, clothes that didn’t fit, I counted 10 cardigan sweaters. He also took her to the store to buy what ever she thought she would need. You would not believe the things she bought. He insisted we take her to her house so she could pick out decorations. All she could think about was how she needed to wash her curtains. I just ended it picking out a few things, but the walls were still pretty bare in Al. My brother insisted we wait til she asks for decorations, because it should be her decision. After several months with a bare room the staff and councilor suggested she needed more personal things in her room. At that point I insisted we bring in the appropriate things to make the rooms fell like home. I found it very difficult to get things she didn’t need out of her room. The good news is she eventually settled in and made friends. Unfortunately she is unable to private pay anymore and we had to move her to a nursing home. That went much the same as the the other move. I new going into the move it was going to be awful, so I was kind of mentally prepared for —— show. She packed everything with no idea what she would take and what would be stored. I had the back of my car loaded with boxes she said she needed. She had kitchen supplies, the cookbook… I refused to bring these things in to the nursing home and my brother and I got in a big fight. He said I had no right to root through her personal things🙄. If she says she needs the things they must be important to her. He even loaded up her tv, but when we toured the place they told us a tv was provided. I hope the move goes better than it did for me. But no matter how bad, getting her there will be a big accomplishment. You can work out all the details later. You are doing the right thing!

  • sconley826
    sconley826 Member Posts: 2
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    Thank you! It's so hard to know if it's the right thing right now and the guilt is awful.

  • SDianeL
    SDianeL Member Posts: 1,954
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    Remember you’re doing it for her, not to her. You will make sure she is well cared for. Her safety and care is the most important thing.

  • JulietteBee
    JulietteBee Member Posts: 191
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    Since the two of you disagree on what is in the best interest of your mom, and mom currently lives with your brother, wouldn't it be easier to tell your brother how to step up his game in caring for mom? If he is willing, it would be more cost effective to keep her where she is. No facility or professional will ever be able to match the love-infused care that her own son can provide…imo🌹

  • H1235
    H1235 Member Posts: 1,109
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    JulietteBee

    Im glad you have not had to deal with a family member so completely out of touch with reality. I don’t know what the situation is for sconley826, but from experience I can tell you, convincing some people about care needs is easier said than done. Some people are just oblivious to the needs of others. My brother has his head buried deep in the sand and refuses to see or accept the situation. He let mom do whatever she wanted( while living with him) because he believed she had the right to make decisions for herself ( regardless of how dangerous). There was no convincing him otherwise, believe me I tried. He would literally set a can of soup on the counter and tell her he would see her tonight. He had no idea when she had showered last and was not concerned at all that she was showering while he was at work(she uses a cane and is a fall risk). I could go on and on. My brother also works full time. This left her home alone all day during the week, which made the situation even more unsafe. Honestly he wasn’t there much on the weekend either.

  • ARIL
    ARIL Member Posts: 175
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    @sconley826 You have made good decisions for your mother’s benefit based on the best information you have. Take a breath, and feel confident you are doing what is best.

    If your brother has demonstrated that he cannot care for her, then that’s that. Her safety and well-being are paramount. Another member, @Timmyd, recently commented on another post, “Don’t go to the hardware store for milk.” That applies here too: there is no use trying and trying to get something from your brother that’s not available.

    There are many posts here about making the actual move that you might find helpful. I hope it goes as well as possible.

  • JulietteBee
    JulietteBee Member Posts: 191
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    @H1235

    Wow! I never thought someone could possibly be so clueless, and averse to making changes. I am so sorry to hear of your experience. It is a good thing your mom has you looking out for her best interest, though she may never verbalize it to you. 🌷

  • Jgirl57
    Jgirl57 Member Posts: 684
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    Hugs to you and your mom for smooth transition to MC. There is no “one” way to manage caregiving .All you can do is give it a try.

  • harshedbuzz
    harshedbuzz Member Posts: 5,564
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    @JulietteBee

    Some truths that don't apply to you as an only-
    Family dynamics can have a huge impact on caregiving.
    Dementia can blow apart siblings that once enjoyed close relationships.

    In many respects, we "onlys" have it easy. Sure, we don't have a sibling(s) to share the load, commiserate with or even provide assurance we're doing the right thing but we don't have someone— who might have a very different outlook and/or agenda— interfering with our LO's safety and well-being.

    You said:

    No facility or professional will ever be able to match the love-infused care that her own son can provide…imo🌹

    This is a bit of a slap in the face for any family member who has placed their loved one in care. For many, 24/7 hands-on care by a single individual is not sustainable. IME, dad's facility— staffed by experienced and well-trained professionals was able to deliver far superior care than my mom was. This was due in part to his willingness to accept their help vs resenting mom's "nagging".

    The OP already tated that her brother is not giving their mom the level of care she needs or deserves. Nothing love-infused here.

    I can't speak to the specifics of the OP's situation, but often the sibling living with mom ended up as caregiver by default as they never asserted their independence by moving out. Sometimes one sibling will prevent or delay placement as a means to preserve their lifestyle (living rent-free at mom's) or to preserve an inheritance. There's even a 2-year caregiver clause that allows an adult child who provided care to be exempted from Medicaid reimbursement (forced sale of the LO's home allowing them to inherit it) when a parent is placed and then dies.

    HB




  • JulietteBee
    JulietteBee Member Posts: 191
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    I in NO way meant to slap anyone in the face by my statement. In context, my statement applied ONLY if brother was willing AND able to step up his game. I would be the very last person to shame or belittle anyone for placing their family where they can be best served. Caregiving as a nurse doing 12 hour shifts was extremely hard. I've had some patients who broke my heart as I knew they were going to go home to elderly spouses who would be required to provide 24/7 care.

    Truthfully, it is after I've read posts on here about family dynamics and difficulties that it came to my mind that being an "only" isn't so bad. Yes, I miss the equal bearing of the load but if it stood to splinter my relationship then I'd rather be an "only."

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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