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Still at home

NancyVa
NancyVa Member Posts: 1 Member
Hello. I’m reaching out because I’m wondering if you can make a recommendation for me. I need to speak to someone that can help me in managing the situation with my mother’s Alzheimer’s. I mean managing it from a psychological Perspective to benefit her. And me. And my husband.  As an example…

My mother simply refuses to accept that her home is where she’s lived for 24 years. Adding to her confusion is that for three years (during Covid) she lived with us. I made that happen because at the beginning of Covid I thought of it as a monster that was knocking on old people’s door and killing them. So we brought her to live with us. And that’s around the time that I discovered that she was starting to have memory issues. She went back to her own apartment in summer of 2023.

Back to the problem with where she lives. Every single day we have the same conversation/argument. She wants me to help her leave where she lives (which is about 15 minute drive away from me). She wants to live anywhere else but there. She says she feels too lonely. That she used to receive more visitors. She tells me every day that I could just drop her off anywhere and she’ll find a place to live. She’s 87 years old.

When I remind her that she’s lived there for 24 years, that it’s a great home, extoll all its virtues… At first she gets very upset and starts to question whether she’s trapped where she lives. She says I’m lying. She has a very nice apartment, and I have arranged 24/7 care for her with very good people. When I’ve lied and agree with her and say “OK I’ll help you find another place to live,” then she remembers that part and she’ll hound me about it for days and days and days. And gets very angry when there’s no progress. It really does not make any sense on several levels to relocate her.

I know that what she really wants is to come back and live with us. But quite frankly our marriage barely survived the pressure of having her with us for three years.

It doesn’t help that all her contemporaries have passed away. Her friends, her family. The  two contemporaries that remain live really far away so she doesn’t get to see them. It’s not that she’s completely isolated. She does live in a good neighborhood with shops and restaurants and her caregivers are always willing/encouraging her to go out for a walk, go out to lunch... But many times all she wants is for me to come and sit with her. And sometimes after I have visited her for a good long while or even during a long phone conversation she questions/confirms my identity.

I guess what I need to know is how do I deal with her overwhelming desire to leave her current living situation when it really makes no sense to do that. I just don’t feel she’s ready for a group situation with strangers. And of course there is the added challenge that she doesn’t remember that we keep having the same conversation. Even if sometimes she does after a while agree that it’s reasonable to stay in her apartment, the next day we start over.

Is there such a thing as a “family dealing with Alzheimer’s“ therapist?

Thank you for any recommendation you might provide.

Comments

  • Quilting brings calm
    Quilting brings calm Member Posts: 2,877
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    She is ready for a group living situation. It’s best to get her in assisted living while she is still ‘with it’ enough to make friends and get involved with activities. It’s also a way of keeping her safe and allowing you and your spouse to have a life.

  • H1235
    H1235 Member Posts: 1,094
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    Welcome. An assisted living environment offers people her own age to talk to(this is huge), activities and maybe even some independence ( she could have alone time in her room if she wanted vs an aid always there). I hate to say it but I almost wonder if its you that don’t want her in a facility. No judgement, I know it’s tough. For the cost of the full time care you are paying for now I would think you could find a very nice facility. Before moving to Al my mom had days she didn’t even bother to get dressed in the morning. After the move she enjoyed meals with friends and bingo. I would encourage you to look at a few places. You should also keep in mind that there can be a waiting list.

  • harshedbuzz
    harshedbuzz Member Posts: 5,543
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    It sounds as though she needs a higher level of care than she's getting. A women who can't identify her own home of 24 years or daughter at times, is too impaired to be "encouraged to go out for a walk".

    In a MCF, she'd have a better staff to resident ratio and dementia informed social programming to keep her busy and engaged.

    HB

  • sandwichone123
    sandwichone123 Member Posts: 1,036
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    Other commenters are correct, I just wanted to add that strangers are just friends we haven't met. She would really benefit from meeting some new friends.

  • psg712
    psg712 Member Posts: 548
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    Few PWD are ever "ready" to leave a familiar environment for a group living situation with people they don't know. But there comes a time when they need it. It sounds like your mom misses socializing with people her own age. Getting her into a group situation while she can still form new relationships might really benefit her in all the ways that H1235 mentioned. She is really dependent on you, which is natural in her situation, but not healthy for you at times. You are smart to recognize the strain on your marriage and set the boundary that you cannot deliver her care in your home.

  • SDianeL
    SDianeL Member Posts: 1,937
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    You can call the Alzheimer’s toll free number and ask if they know any therapists familiar with dementia. Those are few and far between however. I found the best help was right here on this forum. First learn all you can about the disease. Read the book “The 36 Hour Day”. Your Mom doesn’t understand she has dementia. Her short and long term memory is not working. Arguing does no good and only makes her more anxious and agitated. Many with dementia feel the need to go home because to them home isn’t a place, it’s a feeling. Wanting to go home is due to anxiety or remembering a place they used to live. I doubt it’s your home she wants to go to. I would look into memory care facilities. Her care and safety are the most important things. You don’t need to tell her what kind of facility it is or even tell her about the move until the day it happens. The facility may have a Social Worker who will help. Some memory care facilities have support groups open to the public. We understand what you are going through. 💜

  • ARIL
    ARIL Member Posts: 166
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    It sounds as though she would benefit from group living and that she wants to move someplace else. Great! Lean into that.

    As H1235 said, if you have funds for 24/7 care, you’ll be able to afford AL or MC. Tour some places. Look around. You’ll want to be open to the possibility that it is time for a change that could help everyone. It wouldn’t be giving up; believe me, your advocacy and caring roles would continue, just differently. Wishing you well.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more