Bowel incontinence




My DH is stage 6. Up until recently he was bowel incontinent occasionally, maybe once or twice a week. Now it’s all the time. He’s always gone to the bathroom a couple if times a day, now I’m having to change him, clean him, 2-3 times a day. I guess he no longer has any control over it. I do have caregivers during the week but he won’t let anyone change him but me. Even then it’s a fight most times. I’m already drained, and wondering if this is the new norm-how can I do this? Yesterday 3 times, today 3 times. Never easy. I end up cleaning carpet, washing outfits, I cover the bed with towels for him to sit on when I undress him, there more on the towels than on him- then he touches it, wipes it on his shirt. Sorry to be so descriptive but all that to say that each time it’s a huge mess. Anyone else have to deal with this so frequently?
Comments
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My DH just started losing control of his bowels. But I’m in a different situation as he can’t stand/walk and is in a wheelchair. It’s still a mess to clean up. I hate for him that he’s double incontinent. I’m guessing this will be part of the stage he’s in.
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We are in stage 4. I will put her in memory care if we get to that point. I’m not built for that as I’m handicapped and it’s shoulders and arms. I’m so sorry you’re having to deal with all this. Marriages weren’t built for dealing all this stuff. In the early centuries, we didn’t live that long.
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unfortunately it’s all too common. My DH was in memory care before he became incontinent. It happened in late stage 6 but can happen at any time due to the fact that each person progresses differently. My husband became agitated and aggressive and had to be on heavy medication during that time. Is your LO in adult diapers? Is he on anti anxiety meds? That might help him be more compliant.
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Is he on medication that would make him go 3 times a day? Does eat alot? Ask the dr. If that's normal. Seems alot especially if it's loose.
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Can you get him to wear pull-ups? Sure makes it easier to clean up and not as much mess on clothing, floor, towels, etc.
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Thank you all for your advice. Yes he wears adult diapers (has for quite awhile). And he’s on hospice so yes he has meds. Seroquel and Klonopin twice a day. Ativan when he’s agitated. If he’s resistant to being changed the Ativan helps. And yes, if the frequency continues I’ll ask his doctor. So far today just once. If the cleanup wasn’t so “messy” it wouldn't be so awful! But I think once they “go” -then they sit down- if it wasn’t a soft stool to begin with it becomes one!?
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My grandmother had the unerring ability to remove her clothes around 2-4am, when I had dozed off, and walk around in a circle while defecating. She’d laugh when the feces squished between her toes. Between that and the sleep fragmentation, I was worn thin. No real tips, just understanding here.
Also, by the time she was bowel incontinent, her body was slowly shutting down. She would defecate multiple times a day (and quite copious amounts) because her body was no longer properly digesting and absorbing the nutrition. This might be why he’s starting to go more often.
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It is so difficult to deal with fecal incontinence. It is a battle for sure. DH is stage 7 and his body is beginning to shut down. I did change out meds that had fecal incontinence listed as a side effect such as metformin. I do try to take DH to the bathroom about every hour to two hours. It is difficult because he is resistant. I let him sit on the toilet for long time. Sometimes it works and sometimes it doesn't. This is such a hard place to be in. Depends helps.
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This is just an anecdote without any helpful hints.
Before I placed DW in MC, I slowly began to realize she was becoming intermittantly fecal incontinent. For example, we were sitting in the den watching TV, and I noticed a foul smell. I thought maybe the dog had farted. But, no, when I discreetly sniffed her pants, I realized it was her, and the smell had also transferred to the den sofa. Around bedtime she would dispose of the poop and wash her panties. I asked what was going on, and she said, "Nothing."
The incident that really caught me by surprise occurred when I said calmly that I thought she needed to change her pants. (I could smell it.) I was in the bathroom when she took down her pants. There was poop in her panties. She said, "I don't know how that got there." What I realized was that she no longer had awareness of the connection between her body and where the poop came from.
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I would also consider food or meds as a problem. Maybe check with using a mild diarrhea medicine to reduce the number of times.
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I stopped by my parents' house once after dad had had an accident and mom was doing clean up. Not only did her not know how it happened, he accused mom of "putting the sh*! in his pants".
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I had to laugh because that reminded me of an old joke.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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