Baby Monitor, LifeAlert type necklace, or other option best for Mom with Alzheimer’s?



Short version of our situation: my sister, brother and I are caregivers for my Mom. She’s 7 years in now (4 years since official diagnosis). We live split across a duplex, and there’s usually at least one of us on call.
We had been able to leave her by herself for a couple hours if necessary, but that may be changing. I came back from an errand today to find her starting to leave through the front door to look for me or my brother. (He was on the other side so he couldn’t hear her calling.)
She did try to call me on the phone, but was actually using the tv remote.
I need a way for her to contact us quickly if she’s getting worried, that is less confusing. Tried googling for a necklace with a button that goes directly to one of us, so she can just say, “Where are you?” They all seem to involve a monitoring service. (Not ruling it out, just not sure we’re there yet.)
Also pondering a baby monitor, or a door alarm, if she tries to go outside without one of us there. Does anyone have experience that might help us decide which way to go?
Comments
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I've set up my apartment with security cameras. Through the app, 2-way communications is available.
I have one camera in each of the bedrooms, the living room, kitchen, and front door.
There's a second camera in the living room that I use as the "cat cam". It's aimed at the areas the main sleeping area for the cats. When we are gone for an extended time, my wife gets anxious about the cats. I can use the cameras to track down the cats and sho her that they are okay.
The app is available on Android, Windows, and IOS devices. Recording to the cloud is possible (extra cost), although I don't see any reason why to do that. The video can be recorded to a micro SD card. The cameras also automatically recognize motion.
My wife lost her partial denture a couple of weeks ago. Looking at the camera, I was able to see where she had left them.
If you send me a private message, I can let you know what cameras and app I have. 🔜ADMINS: can I post that information here if I won't be financially benefiting from mentioning the names?🔙
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I would be worried about her going out and wandering off. If you didn’t know she did last time I don’t see how a camera would solve that? Unless you stare at the camera 100% of the time? There are door alarms and alarm mats but will someone hear it? In addition to cameras and alarms you will need a way to track her if she wanders off and gets lost. Preferably something law enforcement could use. Some law enforcement agencies have tracking bracelets if she would wear that.
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I used Ring camera for surveillance. I use Alexa Show also for surveillance, but mom was taught how to tell Alexa to call for help. It will then call my cell phone.
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We used cameras for a while. As others mentioned there are door alarms and trackers you might consider. Some of these things may work for a while but the sad reality is she is probably getting very close to the point that she just needs to be supervised 24/7. If she can’t use her phone to call you, would she know what to do if there was a fire? Do you have a plan B?
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@fluffy octopus
I'm sorry you've reached this stage in your mom's disease.
It sounds as though she's reached a point where she no longer has the executive function to be home alone. It's hard to accept both because it's sad to think our LO needs the sort of supervision a child does and also because of the significant loss of our ability to step away and manage logistics of the household and attend to our own emotional need for breaks.
Bringing new technology is very unlikely to be the answer here. Dementia robs their victims of the ability to learn, so bringing in even a simpler device and expecting her to 1) identify it as the solution to her need to know where you are and 2) recall how the device works is unrealistic. She's already to a point where she's attempting to call you using a remote.
Cameras can fill a short gap, but you'd need to be monitoring in real time and able to get to her quickly. And a camera won't help if she's fallen down out of range or left a gas burner on or the tub faucet open in another room.
My mom thought dad was OK for a few daylight hours at home. She was having her HVAC replaced and wanted me to be available in case they had any issues as she didn't trust dad. He wanted to turn the 6 x 10' utility closet into a Jack 'n' Jill suite because his spatial reasoning was so impaired by the disease. The techs called down to warn us that the smoke detector would go off when they soldered a pipe. A few seconds later, it did. Dad sat for about 20 seconds and then asked me what the horrible noise was. I "reminded" him it was the smoke detector. He sat with that information for about 30 seconds and then toddled off to the bedroom- away from the main egresses of the house to tell my mom.
At no point did he call 911, tell me to call for help, warn the techs, or recall that mom wasn't home.
HB2 -
Thank you all - all of those thoughts are quite helpful!
I work from home all but two afternoons, and my brother may be able to adjust his schedule to be in her company those times. We did not realize we were at that point, unfortunately.
In the very short term, I saw recently that someone put up a poster for her dad with pics and labels of the remotes and phones - Mom likes that thought.
It sounds like a combo for now of the tracking necklace, door alarm, cameras and adjusting schedules should help us while we figure out the long term steps.
Your advice and insight was just what I needed - thank you!
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Keep in mind that in some areas there may be a waiting list to get into a facility. You can always turn the opening down if you’re not ready. We waited 6 months. I would think that at some point caring for her and holding down a work from home job is going to be very very difficult. Not know how quickly or slowly things will progress makes this so difficult.
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"pics and labels of the remotes and phones - Mom likes that thought." Sadly with this disease info like the labels isn't going to train or educate your Mom- you're banking on her being able to understand , remember.
It's very hard with esp. a parent because we're used to filling in their blanks as part of our training as kids to make Mom happy.
Being alone part of the time she could microwave something metal, mix in a cleaner instead of a food item into her meal etc.
People place their loved ones , seems to me for a few reasons - behavioral issues, health of and stress on caregiver, not wanting to turn home into a completely child proofed care home[ they can throw away, ruin or misplace things and have no recollection of what happened or understanding of what the item was ] .It's almost like a magic show -I've watched a PWD go to the curb mailbox and come right back in - the mail got disappeared on the way— have NO idea what happened .
If you haven't already, suggested you have your Mother see an elder law attorney do the necessary legal documents to avoid having to go to court for a conservatorship. You don't want that route. Your Mom may be agreeable now but that can change as the disease progresses. She'll react more emotionally as her ability to process thoughts declines.
The attorney can also advise on your state's medicaid institutional coverage and if/how your Mom can apply if you do decide to place her.(on a monitored button) :"Not ruling it out, just not sure we’re there yet." If she's not able to tell the difference between a phone or tv remote , it may be too late for even monitored - they may call to check in - the voice can scare a PWD , and while they can call one of you or send 911 that may be too late for a fire she started - and doesn't understand it isn't just "extra warm now" but a dangerous situation. Monitored buttons that detect falls for a more intact patient can be great but there is no substitute for a functional brain being aware of situations 24/7 and if the PWD no longer can- then 24/7 oversight by another is needed.
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My grandmother wore a Life Alert style necklace for years and understood what it was for, often assuring me that she always had it on. When she finally did have that traumatic fall(she suffered from Alzheimer’s and vascular dementia), she had no idea what was the point of the necklace or how to use it to summon help. Luckily, the gentleman who delivered her her meals noticed she didn’t answer the door that day, which she always did, so he reached out to police who, in turn, reached out to me to try and open the house before they would have had to force the door open.
If not for human intervention, she might not have been discovered for several days.
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@Phoenix1966 That story is how mom came to get her Medical Guardian pendant. She was hospitalized for a COPD exacerbation and her roommate was a lady who's foot when through a board on her old, enclosed back porch. She wasn't found for 2 1/2 days. The story spooked mom, although once her device came I never saw her wear it in the 2 years she paid to have it monitored. The excuses varied from interfering with lines of her shirt, she'll wear it if she goes outside, it make her look like an old lady, etc. The Apple Watch isn't perfect, but so long as I wear one, she thinks it's cool.
"pics and labels of the remotes and phones - Mom likes that thought." Sadly with this disease info like the labels isn't going to train or educate your Mom- you're banking on her being able to understand , remember.This is so true.
You can give it a go, but I doubt it will be helpful. For this to work:
mom would need to recognize* that she doesn't know what each device is for,
mom would need to remember@ that you created a cheat sheet,
mom would consult+ the cheat sheet for clarification,
*Often PWD have anosognosia and are unable to recognize their shortcomings, when dad started to struggle with tech, it was never his fault— it was always something wrong with the device which explains why dad had 5 new laptops when he was finally diagnosed
@Short term memory often prevents a PWD from remembering there's something they can consult. Repeated questions are very upsetting for some caregivers and often they drag out a white board and write a short statement about whatever it is their LO is stuck on. Only it never works because the PWD does think to look for the answer.
+This kind of problem solving requires considerable executive function.
How intact are your mom's reading skills? Dad could decode written English up until he died, but comprehension was iffy at best by stage 5 when he was aiming his cell phone at the TV and grumbling that it was broken again.
HB1 -
Any new technology you buy will be a short term fix, maybe buy you a few weeks or months. She just can't be left alone anymore. Once they are a wander risk, there are many other risks. Safety issues inside the house because their judgement is so compromised. Taking meds they shouldn't, the entire kitchen (stoves, knives, metal in the microwave etc), my mother started to be unaware of how to handle something like a broken glass and get herself all cut up. While you work on getting her 24-7 care some tech may help, but do not assume she can learn anything new. That is highly unlikely she could take to any new device, it has to be something you set up and use yourself. An Alexa style unit allows you to "drop in" and see via the camera and talk to her. The Angel Sense system allows you to set up boundaries so it would alert you if she left. The Apple air tag would allow you to track her if she took off (assuming she wore the right shoes or coat or wherever you attach it.) An Apple Watch would allow you to track her location and also has a fall detection alert, but many PWD would take it off randomly. All these have limitations and are a temporary fix. There is no substitute for full time care once they get to this stage. Each year in my community there are multiple PWD who wander and are found dead. It happens every day all over the country. It's just not something to take lightly, the risks are real. Good luck to you and your family as you face this.
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She's actually on her phone a lot, looking at Facebook and some of the crafting apps, and playing solitaire. I've been trying to get her to engage more in other activities (hit or miss), but am happy it does mean she can still read.
Re: the necklace - even if she can't remember to press the button, if it can be used as a tracking system if she did wander outside, that would be useful. She has a necklace she wears every day, so hopefully she would be ok with that.
We do have the powers of attorney but haven't gotten them signed yet. Has anyone had any difficulty getting something like that notarized? Wasn't sure if having to explain it to her in their office would be a red flag to a lawyer or notary.
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"We do have the powers of attorney but haven't gotten them signed yet. Has anyone had any difficulty getting something like that notarized? Wasn't sure if having to explain it to her in their office would be a red flag to a lawyer or notary. "
If not signed , you just have paper. Not a lawyer , but all of you need to understand what the documents are and how/when to use them . Depending on wording a POA can end when the person is incapacitated or still be active after their health changes, the wording can give powers of placement etc .
These type of documents [you'll probably need more than a DPOA -a AHCD, will or trust , medicaid advise, general tax advise etc] aren't something you can use "Google Esq."(sic) to try to save money. You should consider an elder law attorney. You'll also get advise on how to legally handle her finances in the future.Elder law attorneys aren't inexpensive but the advise is invaluable since there usually aren't any do-overs. Going to probate court is much more expensive, takes time when at that point you've probably hit a crisis.
The good news is elder law attorneys are used to having to explain the forms and to decide if, in their legal opinion, the signer understands enough to be informed. Usually takes a couple of visits , spaced out by a few weeks so that the attorney can see there is sufficient understanding before signing the paperwork they created in the time gap.
is a list of some elder law specialists, there are obviously more that specialize in elder law.
[ "She's actually on her phone a lot," Does she still have access to her assets- scammers look for impaired folks, say they are their "secret" pal and poof , money , assets and information [ DOB SSN cc#s etc] gone.
I'd check who she is talking to , and consider limiting the numbers to family and friends you trust after you have a signed DPOA. You can freeze her credit at that point too- that also requires you be the named agent . The lawyer can give more info on this ]0 -
@fluffy octopus said:
She's actually on her phone a lot, looking at Facebook and some of the crafting apps, and playing solitaire. I've been trying to get her to engage more in other activities (hit or miss), but am happy it does mean she can still read.
I don't know that I would trust a person as confused as she was when she tried to call you on her TV remote with internet access. It's best to think of the internet as a direct line to the state penitentiary. I realize that may have been a one-off to your knowledge, but care needs have to be appropriate for a PWD when they are most confused/least capable while being mindful that this is a progressive condition. If she falls prey to a scammer, you won't get a do-over. Dad managed to day-trade away $360K because mom was happy to have him on the computer "playing solitaire" instead of bugging her. That money would have been useful for his care and later for hers.
These are all image heavy activities. My dad used to "read" novels, street signs and magazines, but I really don't took away anything from the activity.Re: the necklace - even if she can't remember to press the button, if it can be used as a tracking system if she did wander outside, that would be useful. She has a necklace she wears every day, so hopefully she would be ok with that.
I hope she is. The problem with the pendants is that the pendent has some weight to it and is on a lanyard or longer chain that's removable.We do have the powers of attorney but haven't gotten them signed yet. Has anyone had any difficulty getting something like that notarized? Wasn't sure if having to explain it to her in their office would be a red flag to a lawyer or notary.
I would advise against using a downloadable boilerplate POA off the internet. It might not be "durable" (applicable once a person is incompetent) and it might not cover all the sorts of steps you may need to take. Plus, banks and financial institutions will want to vet anything you submit by sending it to their legal department which might not accept. We had my parents' documents drawn up by a CELA and I was able to sell property and manage their banking and investments as needed.
The bar for competency to sign a POA is fairly low and CELAs are used to explaining the terms and purpose in a way that is understandable to someone fairly compromised.
HB0 -
I had similar problems with my dad. What worked for us was the JubileeTV box. It's a small device that connects to his TV and has a simple 6-button remote. He presses one button, and it initiates a video call with me on my phone's app. You can connect your family members to the box, too.
It also has a camera, but it doesn't constantly monitor him, so he has his privacy. It's more of an on-demand thing. I can check in if I need to, it tells me when someone enters or leaves the room, and how long did he left for. When I see he's been gone for too long, I know something might be wrong.
Hope this helps, and good luck
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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