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Jeez

CindyBum
CindyBum Member Posts: 494
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in Caring For a Spouse or Partner

Of all the two clear sentences my DW could get out clean. Yesterday she said, "I can't talk. It makes me want to walk into the road in front of cars." Damn. What a gut punch.

Comments

  • Chance Rider
    Chance Rider Member Posts: 49
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    CindyBum, that’s heartbreaking. Sometimes when my husband sits and stares into space I wonder if he has thoughts and what they are.

  • Chris20cm
    Chris20cm Member Posts: 85
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    https://alzconnected.org/discussion/73880/jeez

    This is a reminder of the hell our loved ones are going through, thank you for sharing.

  • White Crane
    White Crane Member Posts: 1,056
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    Gut punch indeed. I’m sorry, Cindy.

  • WIGO23
    WIGO23 Member Posts: 199
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    How very sad for both of you. This has to be one of the cruelest diseases to suffer for both the patient and the loved ones doing the caregiving. Losing oneself and having moments in which you know it, must be horrifying.

  • SDianeL
    SDianeL Member Posts: 2,054
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    Oh I'm so sorry. It's heartbreaking. Hugs.

  • wose
    wose Member Posts: 235
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    My heart aches for you. This dang disease just sucks the light out of you sometimes.

  • Biggles
    Biggles Member Posts: 464
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    Gut punch and I’m there too. We sit and have an early morning cuppa watch the sun come up on the front verandah used to be wonderful but now it’s total silence no words can come, no discussion no exchange of ideas no anything. I fear I can’t do this every day so much sadness creeps in. I want the end of a jetty!

  • CMC62
    CMC62 Member Posts: 22
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    Heartbreaking. I am so sorry for both of you, and all of us!

  • Gator1976
    Gator1976 Member Posts: 70
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    https://alzconnected.org/discussion/73880/jeez

    I’ve had to call 988 twice in the first 2 months after diagnosis. She’s much better now after attending the H.A.B.I.T. program at Mayo Clinic Jacksonville.

  • PlentyQuiet
    PlentyQuiet Member Posts: 117
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    The loss of conversation is so hard. But then to have such a thought and be able to clearly state it? Brutal.

  • blacksparky
    blacksparky Member Posts: 127
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    So sorry to hear this CindyBum. I know exactly how shocking this is to us caregivers. My DW still talks quite a bit but unfortunately it’s not to me. She blabs in total word salads that make no sense only to her delusional friends while folding the same clothes all day. The other day she started crying and blurted out that she hates that she can’t figure out her words and doesn’t want to go on like this. I ask her if she is ready to go to heaven and she says no but she just hates where she is now. I guess all I can do is be there for her.

  • annie51
    annie51 Member Posts: 357
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    Member

    So sorry for your heartbreak. It’s not enough that we endure the daily issues but then to have a gut punch like that it’s just awful. Sending hugs!

  • persevere
    persevere Member Posts: 8
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    Member
    https://alzconnected.org/discussion/73880/jeez

    I like your DW. Sounds like she’s got some moxie left. This may sound crazy but I’d love to hear my DW utter those words cleanly.

  • Jgirl57
    Jgirl57 Member Posts: 696
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    (((HUGS)))

  • Goodlife2025
    Goodlife2025 Member Posts: 92
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    Cindy - So sorry for the gut punch and also just want to give a hug. I wonder how many of our LOs wish they too could clearly voice their frustrations just once. My DW often tells me dying is hard and all I can do is agree and and give her a hug. Alzheimer's sucks!

  • CindyBum
    CindyBum Member Posts: 494
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    https://alzconnected.org/discussion/comment/251679#Comment_251679

    They could put her picture next to the word "moxie" in the dictionary. ;-)

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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