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Just went to the hospital HELP

This morning when he got up he couldn't walk very well and could not stand up

I called 911 to assist and they suggested to take him in for tests

So here I am all tests including,CT came back normal so they will admit him sometime today or tomorrow

And maybe do a lumbar puncture for further analysis per his doctor

He is very aggressive and nasty and has lashes out at everyone at the hospital.

I feel guilty as ever and I know he will never forgive me for putting him through this They did have to sedate him and I know he will hate me after this And I am nervous take him home after this

Comments

  • Carl46
    Carl46 Member Posts: 1,141
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    I put my wife with AD in MC when she could no longer walk safely, and my best friend placed her husband with AD in memory care when he was no longer able to walk. You are doing the right thing, and your husband would not be angry with you if his mind was intact. You are doing the right thing for him, and placing him in MC or NH is the next right thing to do.

    I am sorry you are having to do this.

  • cdgbdr
    cdgbdr Member Posts: 243
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    Eloise, I am so relieved to read this. PLEASE, do not take him home. Insist on another disposition, perhaps geriatric psych, or SNF. Your well being is important. You both deserve safety, peace and care. I am hoping for the best outcome for both of you.

  • Chammer
    Chammer Member Posts: 199
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    If he is having difficulty walking, you can request acute inpatient rehab or SNF to start and give you time to create a plan.

  • BPS
    BPS Member Posts: 331
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    They may tell you that he is ready for you to take home and may even tell you that he is being discharged and you have to take him. You don't have to, just keep telling them that you can not care for him at home. Keep refusing and repeating over and over that you can not care for him at home. They will be looking for the easiest rout for them, not what is best for you. When it comes time I think it would be better to not be there in person let them call you. It will be easier (still very hard) over the phone. A family member had to do the same thing. It was not about dementia, but I think it still applies. I hope someone can confirm of deny what I am saying because their case was not in a marriage or dementia related.

  • terei
    terei Member Posts: 724
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    BPS is right.. Absolutely refuse to take him home. They will be forced to find a facility to take him.

  • Eloise0304
    Eloise0304 Member Posts: 76
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    I just called the alz help line and they said that if he is discharged from the hospital I have no choice but to take him home…this just the opposite of what you are all saying. I am thoroughly confused, here

  • Eloise0304
    Eloise0304 Member Posts: 76
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    I just hung up from the Alzheimer's help line. They told me just the opposite and if they want to discharge him I must take him home no matter what I do want to take him home I just want it to be safe for him to do so, this is a revolving door

    Comments Please

  • Carl46
    Carl46 Member Posts: 1,141
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    Eloise, my wife came home for one night after the hospital determined, after business hours, that she did not need hospitalization. That meant I was up most of the night making sure she didn't fall again. The next day, transport came to take her to MC. OTOH, I was in no danger beyond the danger of hurting myself picking her up from the floor if she fell again. If you are in danger or just can't take care of him, simply say you cannot take him home and he will have to go to a facility. My friend did that because she is a small woman with physical limitations, and her husband had lost the ability to walk. She ended up paying for a weekend in hospital (her husband collapsed on Friday) because Medicare wouldn't pay for the extra days and the NH wouldn't take him until Monday, but she didn't have to take him home.

    Not needing hospital care doesn't mean the patient doesn't need care. "Not needing hospital care" means the hospital has no effective treatment for the condition. One of my son's friends was sent home to die because her asthma was terminal and the hospital could do no more for her than could be done at the RCF in which she resided.

    I am not familiar with your situation, but other posters who appear to be more familiar hint that you would be in physical danger if you took him home. If that is the case, I would advise you to refuse to take him home. The hospital can't have you arrested if you leave him an additional day while placement is arranged, and they can't just push him out the door.

  • RickM
    RickM Member Posts: 120
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    edited August 27

    When a plan to move my father to memory care blew up and he ended up in a hospital (that lacked a psychiatric clinic) the advisor on the Alzheimer’s Help Line told me to tell the hospital social worker that I did not have a “Safe Discharge”. Apparently a hospital cannot release a patient that doesn’t have a safe place to go. Talk to the social worker about your options.

    The hospital agreed to put him in a room with an assistant 24 hours a day for 3 days. That provided me with enough time to find a memory care facility that specialized in residents with behavioral issues. Medicare may or may not pay for the room and 24 hour care/observation.

    Fortunately he got good care at MC facility and everything worked out well enough until he passed. That was the most difficult weekend of my life.

    Good Luck

  • Eloise0304
    Eloise0304 Member Posts: 76
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    Did I do the right thing by letting the paramedics pick him up and bring him in for evaluation

    I am feeling very very guilty and I do want to take him home

  • Carl46
    Carl46 Member Posts: 1,141
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    You are doing the same thing I would do in your position. You asked for help by calling 911; the paramedics suggested he be evaluated in hospital; the hospital admitted him for tests. You are doing the best you can for him and will continue to do so as long as you can safely do so. I think what you have done is the absolute right thing to do and see no need for you to feel guilty.

    I know you don't want to make your husband unhappy or go against his wishes, but it is our job to make decisions for our LOs when they lose the ability to make rational decisions. I didn't let my wife drive her car when she wanted, because I knew she couldn't safely do so (she couldn't even start the engine, thank God.)

  • Carl46
    Carl46 Member Posts: 1,141
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    If I can't stand up tomorrow morning, I hope someone takes ME to hospital.

  • ALZConnected Moderator
    ALZConnected Moderator Administrator Posts: 92
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    Admin

    We want to acknowledge concerns raised about recent Helpline advice regarding hospital discharge. After reviewing the situation, we found that the information shared was not consistent with our guidelines. Our standard guidance is that if a family feels it is unsafe for their loved one to return home, they should not feel pressured to do so.

    We encourage Eloise0304 to contact the Helpline again and request to speak with a Care Consultant. Care Consultants are specially trained to help families navigate complex situations like hospital discharge and can provide appropriate guidance and support.

    Thank you to those who raised this concern. We are committed to ensuring that families receive accurate, safe, and compassionate support.

  • Jgirl57
    Jgirl57 Member Posts: 696
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    very important clarification

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more