In hospital and medicine
Comments
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How do you get an independent case manager in California? How does it work
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Eloise, you have a very difficult situation, and I can assure you that you cannot manage PPN at home. Pick the best SNF you can from the list they provide based on his needs and location from your home.
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They have him on less meds and PTN, since he hadn't eaten in 10 days. Seems more aware today They are still pressuring me to make a choice for discharge But don't I have a right to see any place they w
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Today the social worker said that I would have to pay out of pocket for him to go to SNF, that Medicare doesn't pay for the room and board, just the nursing care The palliative care person did not say that and I know they want me to consider taking him home but these people are not agreeing help here
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Eloise, you should speak with a certified elder law attorney (CELA) regarding financial things. They can help you know how to get your husband on Medicaid (Medi-Cal) if needed. Medi-Cal pays for SNF. It is different from Medicare.
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Medicare will pay for sub-acute rehab at a SNF. You can transfer him there and talk to a CELA about long term care placement.
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It sounds to me that the facility is attempting to discharge to the SNF either as palliative or hospice care. If that is the case, you will pay room and board out of pocket.
IF it is Hospice they are recommending and you take him home, his care will be covered by Medicare* if he is on Medicare. That covers medications, hospital equipment (hospital bed, etc), routine visits from an RN (usually weekly visits until his condition nears end of life) and an aide to assist in weekly bathing. Medicare does NOT cover sitters or outside caregivers. You would be at home with your DH, get weekly visits, medications, some equipment and access to a Social Worker, Chaplain. You will NOT have someone with you 24 hours a day.
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They have him on less meds and PTN, since he hadn't eaten in 10 days. Seems more aware today They are still pressuring me to make a choice for discharge
Medicare says it will pay for a SNF if it is for short term to manage symptoms (hospice), if The DR orders it
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ELOISE….I am confused. Where had you planned to take you husband when he was discharged?
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He was on PPN which they are going to stop tonight since it was short term, absolutely no feeding tubes for him, now social workers are thinking hospice since he probably won't eat again. How did this escalate so quickly?? He is physically strong with and all tests are normal. HOW do I make this decision? He can still somewhat communicate with me…
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it can progress quickly depending on what area of the brain is affected. Many in late stages stop eating. Ask the hospital about a Medicare certified Hospice inpatient facility. Medicare may cover it. My Mom went into one after her stroke and they provided great care and help for our family.
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Eloise
my mom went from a stage of needing help with her ADLs, using a walker and being on oxygen but otherwise stable … to death in 5 weeks. She went about two weeks after she quit eating, a few days after she quit drinking. No one knows why they know it’s time to stop eating other than the body just seems to shut down that quick. Call on whomever you think needs to say goodbye. Ask that he be placed on an in facility hospice. What decision are they still trying to get you to make since he’s at this stage?2 -
every decision seems like the wrong one.
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They have him in the hospital's hospice floor. This was after I begged them. The social workers said he wouldn't be eligible for that care but somehow he is here. An outside healthcare company contracted with the hospital tried to get me to sign paperwork to get him transferred to one of their facilities. My advice do not sign anything
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is the facility a hospice facility? Is it Medicare approved?
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He is in the actual hospital right now but has not been cleared to stay in the hospice floor now, only the social worker can do this
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Your description of what is currently happening with him is difficult to understand. They have him on a hospice floor but he is not admitted to hospice?
Have you asked them if he is eligible for hospice? Why were you begging them to put him on that floor?
Have you been told that he has a short time to live? What was your objection to having him placed in a facility? What would be his funding if he was placed?
There are too many unknowns here. Also, are you telling them that you cannot provide a safe care plan for him at home? What is their response?5 -
Because he hasn't eaten and cannot swallow, maybe admitted to hospice
I am asking the same questions
Thank you for the input
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He is on the hospice floor, and a decline, I think I gave him a death sentence since the original reason for the ER was for trouble walking and then all this aggressive behavior landed him here in the telemetry unit and now here. Help me sort this out...
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Praying for you, Eloise. I know this has been very hard on you.
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Eloise …
You did nothing wrong - nor did anyone else. People progress ar different rates. My mother was still in stage 4/stage 5 when she died.
in addition, the aggressiveness was already present before he came to the ER. Please review your original posts here2 -
you are NOT to blame for his decline. It happens. PWDs can progress rapidly at late stages due to many different things, one of which is the area of the brain affected by the dementia. It happened to my husband. Hopefully they can find a Medicare approved hospice facility he can be moved to. You cannot care for him at home. Stay strong.
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I don't know how to word this, but the doctor let me know that he is actively dying…I don't know how long that means…
I may have complained about him, but will know that he is a good guy with a terrible disease..it happened so fast I can't wrap my head around it..
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I'm so sorry. Is there anyone, family or friend to be with you.
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Hospice was here in the morning and said that my husbands lungs had cleared up. 15 hours later he died. There is just no predicting.
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I am all alone
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He is in the Hospital Hospice
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I cannot offer any help but I have been following your ordeal and offer my thoughts and prayers that you will get through this.
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he passed last night Thank you for all your support
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Eloise, I am so sorry for your loss. You certainly did the best you could in a horrific situation. So sorry.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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