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CHERISH THOSE POSITIVE PEOPLE AROUND YOU

NMF
NMF Member Posts: 8
25 Care Reactions First Comment
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If there is anything I have learned…only in the very beginning of this incredibly difficult and challenging disease process is that you truly learn who loves & cares for you.. and spouse (DH) be it family or friends. As much as you will or have gone out on a limb for others in their difficult or challenging times.. it most definitely is not reciprocated when it comes to dealing with something like this. It’s is almost as if some friends and family either don’t want to understand or simply don’t care or you really learn how incredibly self absorbed those around us are. Kindness and love should never be done with intent to receive in return… however… isn’t that what a true friendship actually is???? I have learned to embrace and put forth loving energy and kindness to the “right” people.
Going through this is the most lonely feeling.. one cannot surround themselves by others who cannot find it in themselves to either simply listen or provide some type of positivity. It’s actually sickening to me… but eye opening as well.
I don’t post often- actually hardly at all. I am only in the very beginning stages with my DH and I have never been so sad, lonely, but recently had this realization and read an interesting “leave me alone era..” I just simply don’t have an ounce of energy anymore for any type of negativity or anything draining or anyone who can’t set aside themselves for a second.
I have been amazed by the least expected and been disappointed and let down by the most unexpected.
All I know is hold these people close! They’re what matters in this.. beautiful kind souls whose simple statements even just “I’m thinking of you.”
There are beautiful kind souls.. love them- appreciate them.. always reciprocate this kindness and care.. not enough people do!

Comments

  • annie51
    annie51 Member Posts: 387
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    Member

    Well Saud! I totally agree with your statement: I have been amazed by the least expected and been disappointed and let down by the most unexpected.
    I’m not one that’s comfortable asking for help, but I’ve had to change that about myself and can rely on a few good friends to come through. Even some acquaintances who weren’t that close have offered to stop by or to help in any way they can. That keeps my positivity up!

  • SDianeL
    SDianeL Member Posts: 2,173
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    💜

  • Chris20cm
    Chris20cm Member Posts: 96
    100 Likes 25 Insightfuls Reactions 25 Care Reactions 10 Comments
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    This is a wonderful post, thank you so much, and I am right there with you. You have reminded me how important it is to focus our energy, our insights and our communication time with those who, sometimes surprisingly, offer more support, encouragement and appreciation that those we would have expected to. Sometimes it's even people we have never met in person.

    You are so right about being fed up with negativity, it will eat us alive and drain us of life's pleasures.

  • Michele P
    Michele P Member Posts: 74
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    Member

    These posts are spot on. Until someone has gone through this, he or she has no clue. Helping a family member who is a caregiver is not the same as being the sole caregiver. I learned years ago that you can’t expect any more than what someone is capable of giving. Once I lowered my expectations, it made the pill easier to swallow. You lose so much with this disease. After I spent a month getting affairs in order, I shifted gears to living each day to its fullest with my husband. I don’t want to waste time on negativity and sorrow. I want to build a lifetime of memories in the time we have left together.

  • Biggles
    Biggles Member Posts: 493
    500 Care Reactions 250 Likes 100 Insightfuls Reactions 100 Comments
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    Astounding isn’t it how so called friends can abandon you at your very lowest. I too have never felt so alone sad and abandoned dealing with my DHs diagnosis. I would spend so much of my day silently crying and wondering how to cope, what to do, who to talk to, not even doctors wanted to spend time talking to us I suddenly found we had no friends, no one to turn to and nowhere to go. Then I tripped over alzconnected. I was so relieved to have such a wonderful site real people coping with the same challenges who were so happy to share and had kind positive and caring responses to questions and thoughts. I have started to build a new group of positive people around us that we can count on. I don’t feel any bitterness towards our old group it’s just that they don’t need us anymore and we certainly don’t need them. I hope that doesn’t sound too bad. I cherish with open eyes and an open heart the new acquaintances we are now making. My values and priorities have changed and I hope I am a kinder more aware person myself.

  • Denise1847
    Denise1847 Member Posts: 915
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    I, too, have been shocked by the lack of support from friends and family. Yes, you can learn who your real friends are in times like this. I have soul searched to understand the why. I have come to the conclusion that I wasn't very sensitive about suffering until I experienced it. Now I am extremely tuned into other's suffering. My conclusion is that people just don't have any idea just how terrible our plight is. Also, some are just not capable of dealing with our ugly situation. We are all selfish by nature and some just don't want to see their friend etc. in sadness so they avoid it. I have forgiven those who cannot deal with my situation and have chosen to re-select my new circle of friends who are supportive and who I am committed to helping them.

  • Chance Rider
    Chance Rider Member Posts: 76
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    Member

    Over the years our once large and supportive circle of friends has dwindled to the point I feel isolated. We live in a very rural area and as friends have aged many have moved away, to be closer to family, to less rural areas, and some have passed away. I’m still able to take a few hours every Tuesday to get together with a few female friends. A few weeks ago one reached out and gave me the longest tightest hug. To me it said that she sees and hears me, that I matter, I’m not alone. I tear up now just thinking about it. A small but huge gesture that I cherish. That experience will guide my own actions going forward.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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