LO Needs External Help But Won’t Accept It

Our challenge is that Mom adamantly and angrily refuses to consider looking at a facility where she could move to (assisted living or memory care - TBD), and also adamantly refuses to consider even meeting or considering care givers who could help her at home.
She is very angry at her three children and their spouses, accusing them of making up her diagnosis, and accusing them of trying to steal her money. She insists that she knows nothing is wrong with her (exhibiting anosognosia?) and that she absolutely will not accept help. Just bringing the topic up with her triggers extreme anger and agitation, with Mom getting physical to point we have called the police.
In the mean time, Mom is calling her children multiple times per day, often confused and asking for help with daily things, or angrily demanding things. Her short term memory is virtually gone, and she calls with many daily struggles. She constantly loses things, hides things around her home (cash), gets very confused what day it is, etc. We know that she eats very poorly without help. Her family has to deliver her new meds to her daily or she takes too many because she forgets when she takes them. Her new meds do not seem to have helped at al yetl, although she has not been taking them very long.
We are in process of exploring getting guardianship for her. Of course even if we get guardianship, if she continues to refuse help it will be difficult to get her into an assisted living place or to find care givers who will tolerate her angry behavior.
The family is exhausted and sees no end until we can get Mom some external help.
We are looking for guidance how to get Mom the external care that she clearly needs, despite her strong refusal to accept that she wants or needs it. We are concerned it will take a while for her family to get guardianship for Mom, and even with guardianship Mom will not accept external help.
Looking for any guidance. Thanks
Comments
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Welcome. People with dementia often have anosognosia. This is the inability to recognize their symptoms or limitations. There is no point is trying to convince her, she will never believe you and it will only stress you and her out. It is awful! Stop trying to get her to buy into what needs to be done. I know this sound horrible, but do things behind her back without telling her. If a four year old child insists they can stay home alone you wouldn’t let them, because it is obviously not safe. The same is true with your mom. I assume you do not have a DPOA since you are trying to get guardianship. I have heard of people talking about emergency guardianship. It doesn’t sound like that would be out of line here. This sounds like an emergency. Once you have the guardianship or if you have the DPOA (I have DPOA and signed all the paperwork necessary for moms move to a facility. She did not consent.). You need to act without consulting her. Many here use a therapeutic fib to ease their loved ones stress and help things go more smoothly. This might mean telling her she is going to a rehabilitation facility until she is more stable on her feet, or her home needs repairs (gas leak, insect infection) and she is going to need to move out for just a few weeks. Often an inability to recognize time passing may allow this excuse to go on for years. My mom did not want to move to Al and was very very angry. I told her that was what was happening, period. My brother refused a therapeutic fib. She didn’t speak with me for a while. But I know it had to be done. Yes she is going to get mad. What matters is her safety! Even if the four year old throws a fit, you don’t let them do something that is not safe. You need to be the parent now. It’s really tough. A doctor can prescribe medication that may help with her agitation and anger, but finding the right medication and dosage is a process. That might be easier to figure out while she is in a facility. On the other hand if she is too angry and violent it my need to be addressed before the move. Some facilities can have a waiting list. Al facilities may also want to do an evaluation to determine if she is able to be independent enough. Don’t wait til guardianship is approved to figure out the next move. She is not safe! Are her bills and money being managed by a family member? She is very vulnerable to scams. She could loose everything. Assisted living and memory care can be very expensive. Do you know if she has the funds to cover these? Medicaid is less likely to cover al and mc, it varies from state to state. It has been a bit of an emotional roller coaster with mom, but I really do think that the facility reduced her stress. Your mom is in an environment that she has no idea how to navigate. She is in over her head and it’s causing her all kind of stress and anxiety. A move to a facility may reduces some of that stress. I really think the more you can learn about dementia the better for you and her. I have attached a staging tool and an article on dementia.
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Hi Lyman in O - welcome to 'here', but sorry for the reason. H1235 is absolutely correct. totally agree.
You are right, that is definitely anosognosia, which is not denial, but rather, the inability to recognize that anything is wrong. and I'm glad she is not driving, for so many reasons.
If mom is getting violent and police need to be called, you can call 9-1-1 and try to get her taken to a geri-psych facility. There, they can monitor behavior and get some meds going that would help all that. A lot of times a care facility will not take a PWD if they are of behavior that is very upsetting or violent.
also agree on checking her finances. Before we found out and could put our foot down, a family member scammed MIL out of 6-figures. So do be careful, as outsider scams are bad enough, let alone someone we actually thought we could trust.
Would she allow someone to be with her if 'she was helping them?' Sometimes that works if you tell mom the person there needs help, such as 'more hours', or 'more credits toward training', or anything similar that might work. Even if it is more credits toward 'housekeeping', instead of 'caregiving'…
You can let her doc know what is happening. However, if you don't have HIPAA rights, they just won't be able to get back to you (until you have guardianship or DPOA)
All of this is hard! Sorry you are dealing with it
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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