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Fairly new to this dementia thing...

Just for some background, my DH's geriatrician recently diagnosed him with vascular dementia, based on the fact that he had a stroke 3-1/2 years ago. At the time we were told that the only outcome of the stroke was aphasia (word finding difficulty). Since that time he has become disabled due to a bad fall resulting in a broken femur, and a massively long surgery that placed a 20 year old hip replacement with a new one. Even after 2 months of inpatient PT, he has never walked since. So his life is spent in his recliner, wheelchair and bed. I'm fortunate to have 24/7 caregivers (thanks to long term care insurance), but adding cognition issues to what he already has is like a perfect storm. He's also been incontinent since the surgery. He's been on palliative care for the last 1-1/2 years, and I will be discussing a swith to hospice at home with his palliative care nurse next Monday. After doing a ton of research, we feel he should meet the criteria for acceptance into hospice.

I learned about this site from the Duke Caregiver's Conference earlier this month so I thought I would post and introduce myself.

Comments

  • RetiredTeacher
    RetiredTeacher Member Posts: 207
    250 Care Reactions 100 Comments Third Anniversary 100 Likes
    Member

    Welcome to this fabulous site, it has been so helpful for me. I'm sorry your circumstances landed you here. Each of our stories are different but we all share commonalities. May this site give you the support and commaraderie you need. My DH has had several strokes, VD and struggles with mobility. It is such a comfort to have this resource, caring, knowledgeable people who truly understand where we're coming from. Thank you all who walk this journey with us and help us every step of the way.

  • Timmyd
    Timmyd Member Posts: 218
    100 Insightfuls Reactions 100 Comments 100 Likes 100 Care Reactions
    Member

    Welcome to this site. Thank you for sharing your story. Please feel free to post any questions you may have. I have gotten really good advice from the people here with actual lived experience with the problems I face.

  • SDianeL
    SDianeL Member Posts: 2,291
    1,000 Likes 500 Insightfuls Reactions 1000 Comments 500 Care Reactions
    Member

    welcome. So sorry about your husband’s diagnosis. Glad he is getting evaluated for hospice. They offer so much help including counseling. The people here understand what you are going through. Come here often. You are not alone.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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