Patience...



…I'm out of it.
I’ve heard it said that resilience is a virtue, and in my current position, I really need it to be. For the past three years, my husband has had an official diagnosis of Alzheimer’s, but looking back, I realize the signs were there for years before. I had no idea what I was getting into. Now that we're here, I understand I'm still in the early stages, but it already feels like I'm running on empty.
I've been through the terrifying rants of agitation that had me at my wit's end. Medication has worked miracles in that regard, and I pray that relief lasts. Another milestone was when he lost his driver’s license. He's still not over it, but at least he's no longer raging at me, blaming me for it. My family—his kids and my daughter—are finally starting to truly understand what's going on, which is heartbreaking but also a lifeline for me.
To be closer to our six grandchildren, we just moved across the country after 32 years in the same house. The move was monumental, and I was shocked at how much I was capable of doing. I succeeded in so many ways and failed in others—enough to knock the wind out of me when I couldn’t afford to lose my momentum.
Now we're here, in our new home, and I've realized I haven't had a chance to recalibrate. My husband is doing surprisingly well, considering the upheaval, but I haven't even had a moment to think about my own reactions to it all because I'm still so busy. The to-do list is endless: finding new doctors and insurance providers, locating pharmacies, and furnishing the house, all while dealing with the constant unexpected emergencies like appliance problems, plumbing issues, and billing errors. And I'm doing it all by myself.
I keep thinking it will get better, but deep down I know it won't. This is my new normal. The "to-do" list only gets longer, all while I'm trying to cope with his disease progression. He was never one for self-initiative or hobbies, and now that's even more true. He's restless and bored, and he expects me to entertain him. He wants me to take him places or find things for him to do, but I can't. Frankly, I won't. I'm too busy, and I'm not going to lie—I want my own life, too.
I'm out of bandwidth. I have no more to give. How does anyone handle this with grace?
Comments
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The truth is, we don't always handle it with grace and kindness. But we don't quit looking for answers, ideas, insights, programs, articles, organizations and anything that will help us navigate these troubled waters. Sometimes we get crabby. Sometimes we are unforgiving. Sometimes we forget that they can't reason anymore and there's no such thing as insisting on rationality when the "reasoner" is broken.
We keep going. One day at a time.7 -
Stop! Take a day and do nothing. No cleaning cooking . Breath take a walk get grand or kid to spend day with hubby. Easier said than done but try. You need a you day.
4 -
when my husband was diagnosed with AD at 59 I told myself I can’t do this. This can’t happen to us and I was a mess. He had a wonderful job, he just built our retirement home and we were getting ready for traveling and spending time with our grandchildren. Life was so good how could this happen? Not now please god. I was completely devastated for months. I got our legal affairs in order and sold all his equipment and our beautiful home to be closer to our family. We’re on year 7 and my husband is now in memory care because I it was starting to take a toll on me. He requires a lot of care and the cost is almost $10,000 a month. Our retirement is going to his care and it sucks big time. I know he wouldn’t want to be there but thank god he doesn’t know where he’s at. I hate this disease and what it’s done to our lives.
8 -
we know how you feel. Caregiving is mentally and physically exhausting by itself but add moving and it’s compounded. Can family help? I saw a video about how to ask for help. Keep a list on your phone and when someone asks if they can help, give them a specific task. Can you hire help? Housekeeping help, yard help, respite caregiving help? Contact your county’s Agency on Aging and see if they have elderly daycare. You may have to fib to get him to go. Maybe tell him they need help there? I know it feels like it won’t get better but it sounds like you are still doing things related to the move. Maybe when those are done it will get a bit better? Hugs. 💜
2 -
I could not have said it better.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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