The Right Answer


My Mom is in early stages of Dementia, lives along and is very stubborn. My sister and I are her care givers. We have seen her decline while making bad decisions. Our current situation is that she would like to go visit her friends in another state for a few weeks. She has visited early this past summer and things went well with a direct flight. The challenge is that she now claims (sometimes denies) she is in "love" with the husband and they consistently text/talk. We believe the wife is not aware as they are both also struggling with health issues as well (Parkinson's). When talking to Mom, she claims they are really good friends and she would never do anything to break up a marriage. However, we have seen the text messages and they are more than just friend messages. Mom is very adamant about going. The last time, we called the couple to verify they were okay with the visit and yes, they were. We would call this couple again however it just doesn't seem right to let her go when Love is sparking! If we tell her she shouldn't or can't go, she will book a flight on her own and go anyway. This is a tricky, challenging situation and we feel so helpless. Taking away independence is something Mom is not an option for her. Anyone struggle with something similar and suggestions on how to handle?
Comments
-
Welcome. When we think of dementia I had always thought of it as being about memory, but poor judgment, lack of executive functioning, impulse control and loss of social filter are all common symptoms. If this romance seems out of character for your mom I would say this is likely dementia related. My daughter and her husband’s family recently went to a professional ball game. The father is in the very early stages of a diagnosis. You would not know there is anything wrong to talk with him and he still lives independently. He got separated from the family and had left his phone in the car, had no idea where the car was. Police became involved. Thankfully he was found. My point is, is she really able to make all the decisions and judgement calls necessary to take this flight? You mentioned her making bad decisions. Do you have access to her finances. How is she doing with bill paying. This can be one of the first skills to go. If her finances are a mess that may be a clue that a flight would be too much decision making for her to handle. People with dementia often have anosognosia. This is the inability to recognize their symptoms or limitations. It may come across as stubbornness. I doubt very much there will ever come a time when she willingly gives up her independence! It is really tough, but at some point for her safety you will need to step in. My mom lives in a nursing home and needs reminders to shower, but still thinks she would be perfectly fine living on her own in her house. This is why a durable power of attorney is so important. If you don’t have one make it your number one priority o see a lawyer. Sorry I rambled for a bit there, back to your specific problem. Could you make an excuse why she can’t visit? Would the wife of the person she is visiting work with you if you expressed concern about her flight given the dementia? These early stages are so difficult. Since you are new here I have attached a common staging tool that is very helpful. I hope you can find a solution.
1 -
@WMODuff
Hi and welcome. I am sorry for your reason to be here but pleased you found this place.
What an uncomfortable situation you and your sister find yourselves in. I suspect this is a situation where you need to trust your gut.
It's common to think of dementia as a disease of memory loss, but there is so much more to it than that. There are other losses that happen very early in the disease that make this trip unadvisable. The things that come to mind are— a loss of impulse control, loss of social filter and a lack of empathy that could cause real damage to this woman. And then there are the losses around executive function, judgment and problem solving that put her at personal risk.
I have other concerns.
You mention Parkinson's; this disease sometimes comes with a cognitive decline that also impacts mood, judgment, and cognitive function. Is the DH the one with Parkinson's? Could this be a function of 2 people with no social filter or empathy? Or is it the wife? Could the husband be reaching out for help with his wife or "companionship" as an isolated caregiver?
Could she be at risk of being taken of financially? Either by splashing out on dining or gifts for this couple or even being used for loans or gifts that could impact her Medicaid eligibility down the line.
Dementia is progressive. Even if she was able to safely complete a seamless round trip months ago, doesn't mean she can reliably handle one now. And if she's bumped or has a flight canceled, would she be able to manage the situation?
HB1 -
Welcome to the group!
When "not wanting to take away independence" is mentioned, I've had to remind others that THEY are not taking away their loved one's independence. Dementia is!!!
If your mom has dementia & still has the capacity to book a flight on her own, I'd say that is impressive. My mom can not.
However, if your mom is capable of doing so, I believe it is time her DPOA steps in and take away credit cards, debit cards, and checkbook.
She is at risk of being defrauded of her entire life's savings.
Personally speaking, the trip should be viewed as ill-advised. Yes, she is going to get mad, sad, and angry. One of the two most profound things I have learned from this group is that we are tasked with "Keeping our LO safe, not happy."
All the best!
2 -
There would be many ways to stop this unadvised trip. The first would be to make it so your mother cannot travel…that might be ‘disappearing’ her IDs like drivers license and/or passport. Personally, I would have a frank discussion with the wife + make it clear what is going on. She will become your partner in preventing this visit. I would not worry about taking away her independence..that ship has sailed. She is not capable of using common sense or good judgment.
3 -
Thank you for sharing your insights and definitely some new thoughts for me to think about that hadn't occurred to me! Appreciate you sharing this information with me.
0 -
Thank you! I appreciate the attachment, this is helpful information.
0 -
That DBAT is probably one of the most depressing things I've read in a long time. Makes an already depressed person (me) even more so depressed. Sigh… I can barely hold on now. The thought that it's going to get worse, and worse, and worse is just horrible.
1
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more
Categories
- All Categories
- 564 Living With Alzheimer's or Dementia
- 297 I Am Living With Alzheimer's or Other Dementia
- 267 I Am Living With Younger Onset Alzheimer's
- 16.5K Supporting Someone Living with Dementia
- 5.5K I Am a Caregiver (General Topics)
- 8K Caring For a Spouse or Partner
- 2.6K Caring for a Parent
- 217 Caring Long Distance
- 134 Supporting Those Who Have Lost Someone
- 17 Discusiones en Español
- 5 Vivir con Alzheimer u Otra Demencia
- 4 Vivo con Alzheimer u Otra Demencia
- 1 Vivo con Alzheimer de Inicio Más Joven
- 12 Prestación de Cuidado
- 3 Soy Cuidador (Temas Generales)
- 8 Cuidar de un Padre
- 23 ALZConnected Resources
- View Discussions For People Living with Dementia
- View Discussions for Caregivers
- Discusiones en Español
- Browse All Discussions
- Dementia Resources
- 8 Account Assistance
- 15 Help