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Odd Behavior

My DH was diagnosed with MCI about 3 1/2 years ago. He has never officially been diagnosed with AD or Dementia although it is clear that he has it. I estimate he is probably in the middle stages of Dementia. He began several months ago when we would be out in a store he would walk up to some stranger and ask them to either bite me or he would point to another stranger. He has done this 4 times. Each time I tell him to not do that because it is very inappropriate and weird. He always laughs it off and says he is just joking. Now, I am afraid to take him out in public. Has anyone else experienced this with their person who has Dementia?

Comments

  • terei
    terei Member Posts: 736
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    Many PWD lose their social filters and say inappropriate things. If you want to continue taking him out, you could have small cards to hand out subtly after the incident with an explanation that he has dementia.

  • annie51
    annie51 Member Posts: 432
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    It’s so hard to know how to react to the inappropriate comments. My DH went up to a young teenage woman while we were walking and said “Hi, I LIKE you!”. She was taken aback a little and I said “he just wants to say hi”. Then he asked her where she lived. I know he was just making conversation but it makes me uncomfortable. I plan to get some of those dementia cards to hand out to let people know why he says things like that. Something like this…

    https://www.alzstore.com/please-be-patient-alzheimers-cards-p/0187.htm?gclid=Cj0KCQjw0NPGBhCDARIsAGAzpp1e4ncT2jfIfC_NBqXcloPOhUmSTyw5-2qvUmR1Im6t4c0dLWpKYkMaAg4REALw_wcB&utm_source=google&gad_source=1&utm_campaign=Campaign%20-%20PLA%20Shopping&gad_campaignid=685351610&utm_medium=pla

  • SDianeL
    SDianeL Member Posts: 2,295
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    it’s very common. Telling him not to do it won’t work. First he won’t remember and second what I learned here is that “you can’t reason with someone whose reasoner is broken”. The cards are a good idea.

  • Michele P
    Michele P Member Posts: 130
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    I have spoken to store managers in stores we frequent so that they are aware of my husband’s diagnosis.

  • howhale
    howhale Member Posts: 95
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    The difficult experiences in public with your loved one with dementia can be quite upsetting for all. My dear wife was very social and, while she was still able to get around better, when in public would try to talk to others. Most were tolerant but some became frightened or annoyed. When I would try to guide her away or redirect her back to myself or family she would often become upset, resisting, and becoming agitated. In time it became too difficult to even try to get out in any public place for fear of an incident. I was never confident that others would understand and that someone would not call authorities opening up a huge can of worms for us. So, our isolation became more intense, limited to visits to our home mostly. It was a shame because her social nature and enjoyment had become contaminated by this disease stealing from her one experience which she did enjoy. As a note as to my fear about others calling the authorities, on one occasion she became so upset and prior to being under hospice care, that I took her to the emergency room not knowing what else to do. This was also before I had found this forum. She became even more upset, demanding to leave the exam room. The doctor was clearly not well educated about this condition. He was just before committing her to a mental health facility involuntarily. By a stroke of luck, the hospital social worker showed up, realized what was going on and told the doctor his plan would not help her condition, only make it worse. She was discharged quickly, thanks to the social worker intervening, and I took her home, never to ever take her to the hospital again. If the doctor could not understand the situation, I lost any confidence that some nosy person watching an interaction in public would be able to control their need to contact authorities.

  • Chance Rider
    Chance Rider Member Posts: 94
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    I do something similar. Often as we’re leaving a store/restaurant I linger behind as my husband heads to the exit. I take a moment to explain to the person who helped us that he has ALZ and to thank them for their kindness and patience.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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