Our experience with MC respite




Sept 1, I took my DH /alz stage 6 to a memory care facility for a 30 day respite . I wanted to rest and declutter . I told him the doctor wanted to monitor his medications and he said OK. The only opening was a shared room with a gentlemen with a lot of personal belongings . My DH insisted those items were his and frequently took the roommates items and put them on his side of the room. I was able to enlist the help of my sisters, stepdaughter and teenage grandsons and I did indeed get my home declutter /cleaning project completed. On day 12, I received a call from the MC that said my husband had a fall and was having difficulty walking and in pain. I took him to his primary doctors hospital and he was admitted with a fractured L1 ( lower back) . My DH was not cooperative with the staff but did take the pain meds, go for the CT, X-rays and MRI. It was discussed and I consented to kyphoplasty to hopefully stop the pain. “ simple” procedure often completed on seniors and it was successful. I spent 6.5 days ( nights) at the hospital so no respite there. When it was time to be released from the hospital, I took him back home with me rather than return to the MC. We have PT at home to make sure his back stays relaxed and does not tighten up. Next month is my DH annual physical and I will request palliative care and tell them I do not want my husband to have any more hospital admissions. So,,,, my apartment is clean and decluttered, but I am still tired . I do not think I will consider typical MC again, but perhaps a smaller group home community or tough it out at home with increased home help.
Comments
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Oh no! I’m so sorry this happened. Sending hugs.
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That's rough. At least your home space is in order. That's huge. I wish mine were! I know how you feel. I can't imagine putting DH in a facility & this happens! No matter how exhausting this job is, and how much we wish we could have our old lives back, we know we give the best care and that knowledge does provide a sense of real purpose and satisfaction. Try to get respite at home from now on and go away for a night or two here and there. Get family members who will watch like a hawk as I am sure you do. Sending hugs. Ps Have you looked into day programs. That's what I am exploring now so i can have some regular hours alone for myself!
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alzwife2023, SDianeL; thank you. I did find a free program that every other week I can drop my DH off to a group called Making Memories ( different from memory cafe) . It is a morning program that ends at 12:30p. They enlist volunteers for basically one on one assistance and they do crafts, have musical guests , gardening . I am looking forward to this time he is at the program. The Day care centers are too far for regular use and that is how I found out about the local program. I am also going to add increased home companion hours so I have consistent time to rest.
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I am in total agreement with you. My plan 1 is to keep my DW at home with me but I also have a plan 2 and that is in case plan 1 isn’t working due to any circumstances that come up. If I do go to plan 2, it will definitely be at one of the many 6 bed facilities that are available. More of a homey feeling and not the big 60 bed+ facilities. Hang in there and talk to you soon.
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He could have fallen at home with you next to him, it can happen that quick.
I’m 66 and I had an L1 compressed fracture in June and just got released from my corset brace this month. I will start PT next month. I didn’t even fall - we aren’t sure what I did - I have osteoporosis and it doesn’t take much to cause a vertebrae fracture with that. I found out I had osteoporosis after two previous fractures (T1 caused by a car accident, the other (L3) after a fall).
i totally understand you cancelling the rest of the respite while he’s injured. However, don’t let the fall make you swear off future respite or placement. There may be a point where a staff can better do 24/7 care than you on your own. Or your own health may lead you to go that route.2 -
Thanks QBC, wise words. You are correct , the spine surgeon said that many people lose height just with aging and non fall related compressed fractures.
I will keep looking for options , testing the placement waters was hard but I know I need to keep a plan B ready.0 -
I do want to add that the MC facility was clean, good food,many activities , a nice garden courtyard. My DH seemed to enjoy looking out into the gardens. Not sure what our future holds…..
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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