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Medication

My wife has been recently diagnosed with Early Dementia/ Alzheimer’s. I discovered yesterday that she has not been taking her prescribed medications on an everyday basis. After a huge battle, she finally relinquished control her pill box and leave it in a place where I can conveniently check. I have hidden her dementia meds and will fill her pill box on a weekly basis, she truly believed she was taking her meds but in reality was not. How have some of you handled this and what should I do if she goes ballistic that I have her dementia meds hidden from her?

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  • Maru
    Maru Member Posts: 209
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    I started handling all the meds right from the beginning. I set out DH's morning meds and then again in the evening…then I check to make sure that he has taken them. I know that sometime in the future I will have to hand them to him and make sure that he takes them,

  • Timmyd
    Timmyd Member Posts: 233
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    I went through something similar. Eventually you will have to take over responsibility for administering medication. What worked for me was a gradual take over. I tried to use as much cooperation and kindness in the approach and would back off when I sensed conflict. It is hard to solve the problem during or after a moment of conflict. I think hiding the meds right now may not be productive. Just try to keep track of where she keeps them and create an environment with a cooperative approach. Ultimately you need to think about the effectiveness of the meds vs the difficulty caused by the conflict. If there was a day or two that DW missed the meds but we otherwise had peace in the home, I was ok with that.

    In my experience with DW problems like this are not forever. They tend to have some duration and then all of a sudden that problem is gone but replaced by something else.

  • Victoriaredux
    Victoriaredux Member Posts: 45
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    Can you make taking your own meds/vitamins/sugar pills at the same time as she should take hers?

    Leaving her pills out in a case for a week just means one week of meds are at risk at a time.

    For the future ,hard as it is ,try to stage manage everything to avoid trying to get her agreement, understanding cooperation on anything.

    If you haven't already —read up on - Anosognosia
    https://www.agingcare.com/topics/295/anosognosia

  • blacksparky
    blacksparky Member Posts: 159
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    I now have to put my DW’s pills into her hands. I then take my pills and use my motion putting them into my mouth for her to follow. It works pretty good. We then take our glass of water to rinse it down. I also have her open her mouth to make sure she swallowed them. Before all this when she couldn’t figure out what to take, we would sit down with our medications and sort out each days and put them into a small baggy and marked then morning and night. This way she still had some control on her medications. She never saw her actual pill bottles except when we sorted them. So when I finally had to give her her medications, she probably forgot about the RX containers. Everyone on this journey are unique and different so keep trying different things until you get it right. Good luck

  • Leesee
    Leesee Member Posts: 25
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    When my DH was initially diagnosed with ALZ + VD the neuropsychologist said he was moderate stage and asked me to take over his meds. He blew up at her (and me) and said he had been organizing his own meds for years and did not need me to help him.

    Fast forward about 10 months, I was at work and received a call from him. He was confused and thought he had done something "wrong" with his meds but couldn't explain. I went home immediately and discovered he'd taken 3 days of medication in the 2 hours I had been at work.

    Even though his meds are compartmentalized by day and time, he couldn't understand the system anymore. He saw full compartments and thought he forgot to take his meds.

    We ended up spending 8 hours in the ER where they watched his vitals and drew blood every couple of hours. When we got home he asked me to take over his medications.

    I obviously didn't figure out a way to get past his resistance for assistance, so I cannot offer a suggestion. I'm sure our community will offer you better options than the way my situation was resolved :)

  • ronda b
    ronda b Member Posts: 296
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    I took over DH meds when I saw him putting 3 of the same thing in a pill box. Now I fill it 1 time a week and check it daily to see if they are taken

    So far so good. Later it will probably be different. Oh yes I also have two separate pill containers 1 for days and 1 for nights. Each are different colors and work different. Days are easy, nights have seraquel and trazadone and is harder to open.

  • Gator1976
    Gator1976 Member Posts: 87
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    I had to take over everything after I was filling her pill box and she was taking them ok, then one night, Imhave her, her pills, then she took another set from the wrong day and somewhere, she took another set. That’s 24 pills in less than 2 hours. I called 911, to help us sort out what she took and check the toxicity of taking that much. She tolerated it all, and was fine. From then on I fill her pill box and administer ALL her drugs.

  • harshedbuzz
    harshedbuzz Member Posts: 5,872
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    Work arounds are always the best way to go. Don't make this about her incompetence or untrustworthiness.

    Early on, a good strategy is to both take your meds together rather than single her out as needing supervision. If you don't take any scripts, it could be a supplement of Tictac for you.

    You could secure all meds in a lock box explaining it's in case someone breaks in. You can explain that new packaging as "how things are done now".

    It might be useful to have blister packs made for you both instead of her having a pill box. Out of sight is often out of mind; removing visual triggers is typically advised.

    HB

  • wose
    wose Member Posts: 283
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    My DH is still very combative about his pills. I too fill the weekly pillbox. But one day he took two days worth cause he doesn’t know the day of the week. So now I still fill the pillbox for my convenience but set out on the counter his morning pills in a little cup just for that day. He has a little control cause I don’t hand them to him but that will change soon too. He forgot about 1 month into the fact that I was hiding and in control of the bottles. He now thinks it’s convenient for him.

  • debriesea
    debriesea Member Posts: 45
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    You might want to try the automatic pill dispensers where each dose is in a separate compartment and opens automatically at a pre-set time of day.

  • SDianeL
    SDianeL Member Posts: 2,389
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    I took over meds and filled the weekly pill sorter after he had a couple of meltdowns trying to do it on his own. I would hand him his pills and hand him a bottle of water in the other hand and watch him take them. Hide the pill sorter and bottles where she can’t see them or find them. When the doctor added Memantine and Risperidone I just added them to his pills and when he asked what they were for I said the doctor said to help your brain and he accepted that. If she refuses to take her meds talk to the pharmacist and doctor about putting them in her food or drink.

  • jfredrikson17
    jfredrikson17 Member Posts: 4
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    You’re doing the right thing by stepping in. Once memory issues start, med management can get risky pretty fast. Hiding the pills might feel harsh, but honestly it’s safer than the alternative. Most people with early dementia eventually forget or double-dose. Framing it as “helping with the routine” instead of “taking control” may make it easier for both of you.

  • rlender57
    rlender57 Member Posts: 2
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Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more