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seeking doctor recommendation

GigiNYC
GigiNYC Member Posts: 1 Member
hello all, my parent is finally willing to see a doctor re: alzheimer's/dementia. We have no diagnosis, but ALZ runs in the family and they have been experiencing moderate symptoms for a few years now. i am looking for a doctor, preferably in Monmouth County, NJ who is compassionate and patient- they will need patience to deal with my parent lol. Any suggestions would be so appreciated. thank you!

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  • H1235
    H1235 Member Posts: 1,280
    1000 Comments 250 Care Reactions 250 Insightfuls Reactions 250 Likes
    Member

    Welcome. This community is from all over the country I doubt you will find a doctor recommendation for your specific area. When my mom was diagnosed her pcp did a very simple short test in the office. Draw a clock, remember 3 words, count backwards… Mom did this with no problems at all. Some pcp’s might do bloodwork and order a brain scan ( I can’t remember if it’s mri or ct). I sent a patient portal message to the doctor prior to the appointment explaining everything that was goi g on. If I had brought these things up at the appointment she would have had a fit. If don’t have access to a patient portal I would write a letter and bring it to the office before the appointment. She was then referred to a neurologist. The next available appointment was 4 months out ( and I kind of think we were lucky to get her in that soon). At the neurologist they tested her for a couple of hours. When they were done they said things were bad enough that they recommended she not drive and said she was not safe to live alone. I got the impression that a referral was required for the neurologist. People with dementia often have anosognosia. This is the inability to recognize their symptoms or limitations. If these limitations are brought up in conversation they tend to be very upsetting to the person with dementia. Even the most compassionate doctor may cause your parent to become upset. Do you or another family member have a durable power of attorney. This is very important! I will attach a few resources that might be helpful.

    https://www.agingcare.com/topics/295/anosognosia

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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