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Hi! I'm new here... I'm a granddaughter taking care of a grandfather with suspected dementia

Hi. I'm new here. I'm a granddaughter caring for a grandfather with suspected dementia. He has a lot of the symptoms of dementia, but hasn't been diagnosed yet. I talked to a lady at AA WNY chapter and she suggested I try some support groups. A little back story about my journey so far... My grandfather is 94 and over the last 2 years has started having symptoms of dementia. He accuses almost everyone in our family of stealing from him, has memory problems, loses items daily, has started hitting when he gets angry, doesn't comply with taking daily meds, is having falls and over the last 2-3 months he's been having hallucinations. We are taking him to a neurologist at the beginning of the year to hopefully get a diagnosis. I am currently caring for him at home because he doesn't want to go to a nursing home, but he will not at all acknowledge that anything is wrong with him. He is also very defiant and pig-headed about having any kind of help. He says I am turning him into an invalid by trying to get Life Alert and such to keep him safe. I am getting burnout and I know that his 'behaviors' as the doctors call them are likely just going to be getting worse. Any suggestions and/or support I get is very much appreciated!

Comments

  • H1235
    H1235 Member Posts: 1,293
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    Member

    Welcome. Many people with dementia have anosognosia. This is the inability to recognize their symptoms or limitations. It is very difficult. Trying to reason with him or convince him will not work and usually leads to an argument. Here are a few things that might help. If it’s not a big deal just let it go. If he thinks the grass is purple, that’s ok. Another option is to change the subject, distract. Bring him a cookie or turn on a favorite tv show. It might also be helpful at times to tell a fib or two. Tell him the doctor said you shouldn’t… Maybe tell him the help around the house is for you. It’s a whole different way of thinking that doesn’t come naturally, because most have been taught to tell the truth. In my opinion if it saves your loved one from getting upset, it worth it. The doctor may prescribe medication to help. Do you or another family member have a durable power of attorney? This is very important! If you don’t have it yet you should see a lawyer soon. Don’t wait, he has to be able to understand what he is signing ( in my experience the bar is set pretty low, but I wouldn’t put it off). As far as the nursing home goes, no one wants to go to a nursing home, especially someone who thinks there is nothing wrong with them (anosognosia). The caregiver tends to have a lot of the anger, blame and resentment directed towards them. It’s so hard, since you are the one working so hard to care for him and keep him safe. Some people with dementia take direction and help from a family member with even more scorn and anger than they do from aids. He will eventually require 24/7 care if he doesn’t already. I assume you are young. In my opinion you need to live your life. You should at least consider a nursing home, look at options for him. There can sometimes be a waiting list to get in, you don’t want to wait too long. You can still be a kind, caring, loving granddaughter without caring for him 24/7. A DPOA is a lot of work, he would need someone to advocate for him and communicate with doctors and nurses, he would need visits, snacks and someone to manage finances. A nursing home generally means Medicaid. A lawyer can also help with this. I have attached several resources for you. Information and knowledge can help things go more smoothly.

    https://www.agingcare.com/topics/295/anosognosia

    https://www.alzinfo.org/understand-alzheimers/clinical-stages-of-alzheimers/

    https://www.medicaidplanningassistance.org/medicaid-eligibility-income-chart/

  • SDianeL
    SDianeL Member Posts: 2,413
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    Welcome. Sorry about your Grandfather. I learned here that you can’t reason with someone whose reasoner is broken. Read the book “The 36 Hour Day” which will help you help him. Search online for dementia caregiving videos by Tam Cummings and Teepa Snow. As the disease progresses you will need help. That can be hiring caregivers for home which is very expensive or placing him in a Memory Care facility. Don’t wait to have a Plan B.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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