Have any questions about how to use the community? Check out the Help Discussion.

How To Find Purpose Again?

I knew where the path ended, the outcome never in doubt, but after so many years with my purpose being to care for my dear wife how do I find any purpose in going on? After 60 years together, with the last 10 or so caring for her as she suffered AD, my singular goal was to provide her care to keep her at home as she wanted. And, now it is over, as of August, and I struggle to go forward with any purpose. I did all the busy work to handle affairs, disposition of her clothes, etc., organizing the home again, etc., etc. in the first couple months. I am like the third wheel, others not knowing what to do or what to say to help, that uncomfortable time when people feel it and stay away. Family is in the area but they all have their lives to live, work, school, vacations, the things they want and need to do to continue to live their lives. They all encouraged I get back into "my hobby" of woodworking now that I have the time. I don't want "that time" because I am alone. I tried to help them understand that my hobby was as much for her as myself. Looking back on projects, each one was either done for her, then expanded to others after seeing hers, or she gave her approval with her smile for projects done for others. Not one was done with that smile, not a single one. I cannot get that smile any longer so I just sit and look at the tools, unable to turn one on. Probably not a good idea to start large power tools with tears running down my face. Most see the past years as unique and in many ways it was, but caring for my dear wife was not limited to her worst years. From the day she said "yes", my purpose was to care for her just as she did for me. It just took different forms along the way. All I ever needed as a reward was her smile to keep going. Without that reward, what is the purpose to keep going. How and where do I find my purpose now?

Comments

  • midge333
    midge333 Member Posts: 623
    250 Care Reactions 500 Comments 250 Likes 100 Insightfuls Reactions
    Member

    I am in the same boat. I feel rudderless. I gave up my career to care for my DW. I can no longer go back to my career. What do I do with the time I have left? My DW also died in August and the early days were filled with many tasks which kept me occupied but now I sit with no direction or desire to move forward.

  • howhale
    howhale Member Posts: 159
    250 Care Reactions 100 Likes 100 Comments 25 Insightfuls Reactions
    Member

    It is so hard going from full speed ahead taking care of my dear wife fulltime. Every minute of every day filled with ensuring her safety and care and then the abrupt stop to completely empty days. I am still in the midst of daily outbursts of tears coming at unexpected moments so I even hesitate to try to go out to eat. The one occasion I did try was miserable, sitting alone, wishing the food would come faster so I could leave. I even find it hard to prepare a meal at home and eat it with any enjoyment. When I start to eat I often breakdown with tears and just toss the food. There is just something about trying to eat a meal alone where we always ate that just almost makes me ill. I do appreciate everyone's concern and efforts to help but I just don't think they understand how hard it is to change. Every day has become a struggle to find something, anything to do to use up some of my mind's time to reduce the grief. I enjoy reading and prefer holding the book in my hand versus a tablet so I have several books on hand. Reading takes my mind away for a while which helps. Television is of no help. I have come to almost hate the sound. Cleaning the home, again and again, is busy work that I use. Maybe, in time, I will be able to take more steps forward but I cannot right now. I hope you find a way forward soon also so that we can begin to crawl out of this suffocating place in which we find ourselves. All the best to you on your path forward.

  • SDianeL
    SDianeL Member Posts: 2,581
    1,000 Care Reactions 1,000 Likes 500 Insightfuls Reactions 1000 Comments
    Member

    it’s been 18 months and I feel the same. I force myself to do things. Someone mentioned the Grief Share Organization that has online and in person support groups. The in person groups are usually at churches. I’m going to go to a in person one after the holidays. I made a list of ways that I can honor my husband’s memory and am doing them one at a time. That helps. The link for Grief Share is below. Sometimes just talking to someone who understands helps. Like this group. Thanks for listening. Hugs. 💜 https://www.griefshare.org

  • howhale
    howhale Member Posts: 159
    250 Care Reactions 100 Likes 100 Comments 25 Insightfuls Reactions
    Member

    Thanks for the link. I will check that out. Looked for local grief resources a month or so ago and found little but will try this organization. I saw in another of your posts your comment regarding a list of ways to honor your husband's memory. Protecting, preserving and sharing my wife's memory is terribly important to me. Can you share examples of what you ideas you are using? I have a great fear of losing her memory for myself, but more importantly for the grandchildren, great-grandchildren and beyond. I keep stumbling along trying to find ways to ensure the life of this remarkable woman lives on for generations to enjoy but I do feel like I am just grasping at ideas for now. Thanks so much for sharing the link.

  • fmb
    fmb Member Posts: 579
    500 Care Reactions 250 Likes 500 Comments 100 Insightfuls Reactions
    Member

    My husband died 10 months ago. It was very hard to motivate myself to do anything the first six months or so, despite having a number of things that had to be done (my mother's out-of-state funeral, dealing with my attorney regarding his daughters' demands on the estate, disposing of belongings in order to move to an apartment, and actually moving). When the dust settled, and I did almost nothing but rest for a month, I began to fill my schedule, a little too full, to be honest. I've had to cut back because I just don't have the energy I used to have. (Grief will do that to you.)

    One thing that I had all along was my volunteer work. I've made baby quilts for charity (Project Linus) for years. After Roger died, I was able to return to working at our collection and distribution center two days a week. This has become my purpose and fills a fair amount of my time. Many of the volunteers are widows, and all have been a great support.

    Like you, I hate TV (especially the noise) and love to read real books. But the eyes can take only so much reading in a day. So I end up going to bed ridiculously early most evenings.

    A man I know was widowed almost three years ago. He retired from his teaching position at a university last year. He fills his time a number of ways. He volunteers with his local Friends of the Library one day a week. He has become rather active in his church, including presenting at their bereavement ministry meetings and being a behind-the-scenes set-up guy for various events at the church. He joined a group called ROMEOs (Retired Old Men Eating Out), and they meet at various restaurants once a month and eat out and enjoy each other's company. He is a Vietnam veteran and attends local functions in the veterans community. He also joined the local Y and works out a few days a week (at the age of 78!)

    When my father and brother each retired, they started volunteering with Habitat for Humanity. They (and similar organizations) welcome volunteers who know their way around power tools and aren't afraid to get their hands dirty. My mother volunteered at a charity thrift store, and prior to that was a volunteer museum docent.

    I guess I'm just tossing out ideas. Is there any area where you have expertise that you might like to share with others? New areas of interest you might like to explore? Taking the first step is the hardest, but you just might find something you like to do that will fill up your time a little and give you something to look forward to.

  • howhale
    howhale Member Posts: 159
    250 Care Reactions 100 Likes 100 Comments 25 Insightfuls Reactions
    Member

    Thank you for the ideas. I just need to take the step to look around and put a little effort into finding things that I can enjoy and yet contribute. It is that first step that just has not been possible yet. I plan to try some grief resources starting in January. I started to do so before but just backed out. If I survive this holiday season, which includes her birthday as well, I have to take a first step. Thanks for sharing and the suggestions.

  • SDianeL
    SDianeL Member Posts: 2,581
    1,000 Care Reactions 1,000 Likes 500 Insightfuls Reactions 1000 Comments
    Member

    My husband was a veteran so my list includes those things. Other non military things: I donated money to the Alzheimer’s Association on his birthday and anniversary of his death. I visit the cemetery on his birthday and anniversary of his death. I call his daughter often and check on her (she’s my step daughter). I go to his favorite restaurant which was the last time we went out to eat. It’s a BBQ place with service members pictures on the wall and his picture is over our booth we always sat in. Eat a piece of his favorite pie or cake. I called his friend to check on him and found out he has pancreatic cancer. I offered to help him. I started writing about our story after his diagnosis. I’m also writing about our RV travels. If your LO loved animals, donate to animal shelters or volunteer in their memory. Due to my cancer diagnosis I’m not able to volunteer. As you know I come here to try to help others going through this. I would like to find a dementia caregiver support group and join it to try to help others but I haven’t been able to start searching for one yet. I gave his daughter and grandchildren things of his that meant something to each of them. I’m planning a trip with his daughter to where he was born. She’s never been there. I would start by making a list of what your LO liked or felt was important and that may help you start your list. Hope you have a Blessed Thanksgiving. My hearts not in it but I’m going to help my daughter make dinner. And I will eat a piece of pecan pie for my Lonny. 💜

  • howhale
    howhale Member Posts: 159
    250 Care Reactions 100 Likes 100 Comments 25 Insightfuls Reactions
    Member

    Thank you so much for sharing how you honor your husbands memory. I should make a list and ask family to add to it. Maybe that will provide me ideas and a guide. I have written my wife poems since we first met and i still write now but they are more to get my grief and feelings out. My daughters have copies of them all and I recorded reading each which they have as well. Wrote a history of sorts of my life with her but need to update it further so that was a good suggestion you made. Keeping her memory alive and well for the family and family generations to come is extremely important to me. I want all to know this remarkable woman and telling her story and preserving her special mementos with the story behind each is a continuing task. Thanks for jogging my memory, sharing your ideas and helping me see more opportunities.

  • GothicGremlin
    GothicGremlin Member Posts: 1,292
    Sixth Anniversary 1000 Comments 250 Likes 250 Care Reactions
    Member

    @howhale about keeping your wife's memory alive and honoring her …

    I don't know if this is helpful or not, but after my sister passed away from AD/FTD, I decided I'd write a blog about it in the hopes of keeping Peggy's memory alive, but also to help others who are just beginning this journey. One thing that always pops up on this site is that very few recognize the Mild Cognitive Impairment stage - the stage where you can make plans. I was in that same boat. We didn't catch Peggy's illness until she was stage 4, so I wanted to describe what happened to Peggy during her MCI stage, so that maybe people will recognize some of those behaviors in their loved one and start asking questions.

    For the blog, I always kept notes, journals, doctor notes, emails, etc., and I compiled them all into a chronology, including my 20/20 hindsight on MCI. Then I started writing posts, including one called "the before times" to show what Peggy was like before AD/FTD came into her life. She was a full, independent, talented person, and I do want people to know that. The writing part is finished, and now I'm editing, but I've got about 20 posts completely done.

    It took quite awhile to get it all written, but what I found was that the process of writing things down made some things clearer in my mind, and it also gave me some peace. The pain is still there, of course, but manageable now.

  • howhale
    howhale Member Posts: 159
    250 Care Reactions 100 Likes 100 Comments 25 Insightfuls Reactions
    Member

    Thank you for sharing your approach to preserving the memory of your sister. I too use writing to help my grief and to put my thoughts down for others and to preserve her memory. I use poems mostly, and have for many years to her, which are compiled and shared with family. Now my poems are more about the loss for us all, but especially my personal grief. It helps me and I leave it to the family whether or not to even read these, but I do provide them. I also record my reading of each poem so they will have my voice. In the ones especially since her passing they will be able to hear my emotions and grief, not to be intentional about that but because no matter how long I wait to record each, it still pours out. Maybe that will let others in the future know how special she was also. I wrote a "story" when this all started to tell our story together and the amazing things she did and experienced in her life. I will add to that. With regards to the disease itself, I am trying to participate here so much more than I did while caring for her. I took so much from this forum that helped me then that giving back by sharing our experiences is my small way to help others. Thanks to everyone for sharing.

  • Eloise0304
    Eloise0304 Member Posts: 122
    100 Care Reactions 10 Comments 5 Likes
    Member

    I read your post and I too, do laundry and clean the house…The quiet time alone is the worst

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more