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Neurological Symptoms

I am here because my DH has been struggling with short-term memory loss for a couple years now. We don't have an official diagnosis yet, but the general consensus seems to be vascular dementia. He asks the same questions over and over again, as if on repeat. We went to his neice's wedding, and then he forgot she got married. He called a friend and left a message, then called again moments later because he forgot he left a message. He asks about old friends who have died in recent years, wanting to know how they are doing. I could go on and on… you all know these symptoms.

For the last few months, DH has been experiencing recurrent, brief episodes of involuntary oral movements that began w/lip smacking, and have shifted to teeth-chomping more recently. They were originally accompanied by a numb sensation in his abdomen, which has now shifted to a numbness in his left thigh. During an episode, he can vaguely describe what he is experiencing, but moments later he forgets it happened altogether.

I'm not sure if it's relevant, but I'll point out that 8 years ago DH's heart stopped briefly, four times during a 24 hour period, and a pacemaker was eventually implanted later that week. His first sign that something was wrong was a numb sensation in his abdomen. It was never determined exactly why his heart stopped that day.

His MRI, CT scan, and EEG are "normal for his age"… whatever that means. I've reached out to the neurologist to ask about these odd neurological sensations DH is experiencing, but have not heard back. I'm not sure what to do.

Comments

  • SDianeL
    SDianeL Member Posts: 2,517
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    I would definitely speak to the Neurologist but found this online: Lip-smacking and teeth-chomping in people with dementia can be involuntary movements like orofacial dyskinesia or hyperorality, often associated with frontotemporal dementia (FTD) or side effects from certain medications. These behaviors are repetitive and compulsive, sometimes leading to bruxism (teeth grinding) which can be related to the disease's progression. Other causes include neurological disorders, medication side effects, or other cognitive changes. 

  • SDianeL
    SDianeL Member Posts: 2,517
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    has a Cardiologist checked his pacemaker recently? I would worry the abdominal and left thigh pain were related to the pacemaker.

  • Call me Gram
    Call me Gram Member Posts: 10
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    Thank you, SDianeL. Yes, his pacemaker was checked recently. It is working as it should. It doesn't seem to be any of his meds, based on their known side effects.

  • SDianeL
    SDianeL Member Posts: 2,517
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    please keep us posted. I know this is scary.

  • Iris L.
    Iris L. Member Posts: 5,055
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    Tardive dyskinesia can be caused by medications but may have other causes. I suggest to keep reaching out to the neurologist. You might think about taking videos on your phone of the lip-snacking.

    Iris

  • Call me Gram
    Call me Gram Member Posts: 10
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    Thank you, both! The neurologist called this morning. She ordered a second EEG, to see if anything has changed since last spring. She said to journal the episodes to determine how often they are happening and how long they are lasting. We reviewed his meds and couldn't find any that might have side effects that would explain his episodes.

    He is not happy that he has to have another EEG. 🤦‍♀️🧘‍♀️🙂

  • harshedbuzz
    harshedbuzz Member Posts: 5,950
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    I would reach out to his neurologist with videos to document. It might be useful to keep track of when you're seeing this behavior— is he tired, bored, anxious, agitated?

    Is he on one of the atypical antipsychotics with TD as a known side effect?

    Another thought could be development of a tic. One of my friends' moms developed an oral tic that seemed to be a self-soothing mechanism like the stims seen in ASD. She started initially using her tongue to unseal her upper dentures making a clicking sound. If she didn't have her dentures for some reason, she would lip smack instead. Her doctor was unable to find a reason as she wasn't on any medication at the time. Her doc did add a low dose SSRI which can sometimes relieve the anxiety that can exacerbate tics. It didn't.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more