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Experiences with anti-amyloid therapies (Leqembi or Kisunla)

AbbyL
AbbyL Member Posts: 2
First Comment
Member
in Caring for a Parent
Hi, I'm new to the community. My mom was recently diagnosed with MCI, blood test positive for AD. It seems there may be some serious risks with the anti-amyloid therapies but do the benefits out weigh the risks? I wanted to see if anyone would share their experiences with anti-amyloid therapies (Leqembi or Kisunla).

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  • SDianeL
    SDianeL Member Posts: 2,596
    2500 Comments 1,000 Care Reactions 1,000 Likes 500 Insightfuls Reactions
    Member

    welcome. You are at the right place for info and support. Another person just posted the same question under the Caring for a Spouse or Partner Section. There are some replies there. You can also search all the old posts on the forum using the search feature at the top of the page that looks like a magnifying glass.

  • JJ401
    JJ401 Member Posts: 387
    Seventh Anniversary 100 Likes 100 Comments 25 Insightfuls Reactions
    Member

    While the blood test is positive for the Alzheimer’s related gene, you also need to look at how many copies of which gene she has. The greatest risk of complication is for those with two copies of the APOE4 gene. DH here has one copy of APOE3 and is month ten of Kisunla, and has had no issues. I don’t expect a cure. I hope for more time in the lower stage he is currently in.

  • AbbyL
    AbbyL Member Posts: 2
    First Comment
    Member

    thanks very much! I really appreciate the responses!

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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