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More about spitting…

It’s been a long time since I’ve checked in. My husband is still going strong physically and he’s on eighteen years since learning he had a diagnosis of MCI. Probably twenty five years if counting behavioral changes proceeding memory loss. He’s considered to be in advanced stages of loss of cognition, but I’m not convinced. Except it seems he’s forgetting he can swallow once he’s full or if he has a crumb or excess saliva in his mouth as he’s increasingly clearing his throat and spitting. The “achem” action of trying to bring it up irritates and inflames his throat, so it’s a cyclical problem. I sit with him and coach him to sip cool water, and thought that helped, but last night it just made him vomit. When I ask why he doesn’t swallow he says he doesn’t want to choke. But he can swallow fine when he is automatically holding a burger or something and is hungry. It’s as if he just forgets to swallow other times. I don’t know how to help him. I’m afraid aspirating is what will take him eventually. Infrequent spitting begun about 18 months ago and is now a regular thing after he eats.

This is my only real concern because long gone are delusions, paranoia, and confusing other residents are me as he can no longer think. He doesn’t know my name or relation, but he stands, smiles, laughs, and hugs! He always says he’s fine when I ask. Thank God for this!

Wishing all of you wonderful carers something in which to by thankful for on your journeys of this difficult path we share. ❤️🙏

Comments

  • trottingalong
    trottingalong Member Posts: 945
    Ninth Anniversary 500 Care Reactions 500 Likes 250 Insightfuls Reactions
    Member

    My MIL did that exact same thing. My FIL was so worried about her choking that he switched to soft foods. Eventually she just didn’t know how to swallow any more. My father passed away 3 years ago from melanoma. At the end he would chew and chew and chew, but couldn’t figure out how to swallow. The cancer had spread to his brain.

  • Nowhere
    Nowhere Member Posts: 311
    Sixth Anniversary 100 Likes 100 Care Reactions 100 Comments
    Member

    I appreciate you three sharing your experience with this “can’t swallow and need to spit” issue. S.Daniel, I can imagine how tough that decision would be. I think I’d make the same hard choice. His uncomfortableness with being afraid he’s going to choke on saliva is not going to go away in time like his delusions and paranoia did. They were a phase; whereas being unable to swallow is a loss of function. He’s not on hospice and we haven’t had a swallow test. Is the test uncomfortable or distressing for our loved ones? I’m sorry you lost your dad to this, HB. And hugs to you TrottingAlong, too.

  • SDianeL
    SDianeL Member Posts: 3,053
    1,500 Likes 1,000 Insightfuls Reactions 2500 Comments 1,000 Care Reactions
    Member

    I would get hospice involved now. Please don’t wait. I don’t think the swallow test is difficult. He probably won’t remember it. It will help them determine if he needs a soft diet or puréed food and thickened liquids. Regular liquids are worse. Have the test done asap.

  • Lilydaisy
    Lilydaisy Member Posts: 87
    Seventh Anniversary 25 Insightfuls Reactions 25 Likes 25 Care Reactions
    Member

    You are a saint to have cared for your DH for so many years. This is such a difficult disease to manage. I hope you have been able to get breaks or get away occasionally. It sounds like he may be nearing the end stages based upon my mother's experience. Best wishes in the days and years ahead.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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