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Whyyyy!!!?????

I can't do this. I lost my love Luis (46 yo eoa) just yesterday morning but it feels much longer.

I cried going to bed last night thinking what do I do tomorrow? He won't be in the bedroom when I get up, with his legs up in the fetal position cycling them back and forth.

Who is going to watch me get ready in the morning for work?

Tonight's emotions are someone please wake me up from this nightmare. It's not true he isn't gone! I dont know how to do this part without him. He was always my rock and told me that its going to be okay. That he wasn't scared. But its not okay and I am scared!!!!!

Whyyyy!!!!!!!!!!!!! Whyyyy my baby???????? I hate you alzheimerz i hate you so FU****G much!!!!!!! I hate that you took the sweetest man at such a young age!!!! I hate that you robbed me of my life with him the last 3 years!!! You took him from his son!!!! He is only 15. You will never get to watch his games, him graduate, get married!!!! His mom has a piece of you that I will never have.

I understand now how hard it would have been to care for you and a child at the same time but its not fair. We tried so hard for a baby!!!!! Crazy I know but I knew the inevitable was to happen amd I wanted a piece of you for forever!!!! Your ashes won't be enough for me.

I miss you so much it hurts!!!!

We are all in this together 💜

Comments

  • cdgbdr
    cdgbdr Member Posts: 284
    100 Care Reactions 100 Likes 100 Comments 25 Insightfuls Reactions
    Member

    I am so very sorry. No words fro me will help now. Lean on others and know that you need and deserve care at this time. You provided him with excellent care and love.

  • Biggles
    Biggles Member Posts: 598
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    Member

    I am weeping buckets of tears for you, for me and for all of us here. It’s not fair it’s not real it can’t be happening it can’t have happened at such a young age to you. I am so sorry, my tears are flowing as I type.

  • tonyac2
    tonyac2 Member Posts: 138
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    Member

    I can feel the pain as I read your post. Why, is the most cruel question of all. This doesn’t make sense and that’s the hard part. Gone far too soon. I’m so sorry.

  • Metta
    Metta Member Posts: 93
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    Member

    You have poured out what so many of us here feel. I could have written those words on Thanksgiving morning at 2am sobbing and every day since then. My heart breaks for you.

  • Colacho10
    Colacho10 Member Posts: 51
    25 Insightfuls Reactions 10 Comments 5 Care Reactions 5 Likes
    Member

    I'm so sorry for your loss. Just allow yourself to feel all the emotions, and don't try to suppress them. The "rock" he was to you is still part of your strength, and it's ok to lean on others for help. I hope you go through this as painlessly as you possible.

  • Marla13
    Marla13 Member Posts: 49
    Third Anniversary 25 Likes 10 Comments 5 Insightfuls Reactions
    Member

    I am so sorry for what you are going through. Such pain and sorrow. Hugs.

  • jgreen
    jgreen Member Posts: 82
    100 Likes 25 Care Reactions 25 Insightfuls Reactions 10 Comments
    Member

    Dear @MarDel0917

    I am so so very sorry you are going through your great loss! I/we are glad you are here with us so we can support you.

    I just glanced at the titles on another of these boards - Supporting Those Who Have Lost Someone. (You will see the individual discussion threads when you first log in to the Caring for Caregivers blog). This could be a way to gently guide you in your transition to stage 8. I see some familiar sign-in’s on that board so you will be in great and caring company. I do ask that you stay in touch and let us know how you are doing.

    I have you (and all) in my prayers. God bless you at this difficult time. 💔

  • charley0419
    charley0419 Member Posts: 513
    250 Care Reactions 100 Likes 100 Comments Second Anniversary
    Member

    so young not fair I feel for you God Bless you and your family.

  • marier
    marier Member Posts: 131
    Seventh Anniversary 100 Comments 100 Care Reactions 25 Insightfuls Reactions
    Member

    I too am crying as I read your post. Sending you hugs and thoughts of love.

  • CindyBum
    CindyBum Member Posts: 583
    500 Likes 500 Care Reactions 500 Comments 100 Insightfuls Reactions
    Member

    Oh, MarDel. I'm so sorry. Dementia in all its forms can go right to hell as far as I'm concerned.

  • Dio
    Dio Member Posts: 880
    250 Likes 250 Care Reactions 500 Comments Third Anniversary
    Member

    Sending you lots of hugs…the pain is unbearable, we know. Words won't help. Just know we are here.

  • Jgirl57
    Jgirl57 Member Posts: 738
    Fifth Anniversary 250 Likes 500 Comments 100 Care Reactions
    Member

    scream scream scream !!! I too hate Alzheimer’s !!! ((( HUGS))) to your sad heart .

  • annie51
    annie51 Member Posts: 482
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    Member

    My heart breaks for you and to go through this at such a young age just adds to the pain. You WILL get through this but let your grief out, don’t suppress it. We’re hear to listen and cry with you whenever you need it.

  • SDianeL
    SDianeL Member Posts: 2,596
    2500 Comments 1,000 Care Reactions 1,000 Likes 500 Insightfuls Reactions
    Member

    YES!! I hate f**king Alzheimer’s too!! This disease is terrifying and heartbreaking. Nobody understands unless they have walked in our shoes. There is an organization called Grief Share that has online support or in person support at churches. I’m looking into it. I also continue to come here where I have received so much caring support. Sending love and hugs. 💜🙏

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more