Grief Differences Among Family
I wanted to reach out to others here for feedback. I struggle trying to help family understand why their grief for the loss of their mother or grandmother looks so much different than the overwhelming grief they see in me. I know each and every one misses her terribly, so it is definitely not because they cared less or loved her less. It is obvious that, as the primary caregiver for all these years, I would have seen and experienced more maybe leading to differences. What I am after is a better way to calibrate us all. They are not stronger than I am, so why is it so debilitating for me? My simplistic answer to them until now has been "it took us ten years to get here, it might take ten years to get over it". Sounds good but I don't think it carries much meaning for them. So, here is a thought. If you consider this was a 10 year process from first signs to the end, and it existed throughout the pandemic (further reducing their exposure to her), how many times did you see her in person for a visit (all were a couple hours max)? How many times did you find yourself crying after a visit? How many times did you find yourself crying after an update was provided by email or phone? How many times did you find yourself breaking into uncontrollable crying in between these visits or updates? There is no judgement intended here and actually an encouragement for each NOT to share their answers. Regardless of their answers, my answer would be, for my 24/7 exposure over the 10 years, almost none. I never broke down or cried openly. Am I heartless and cold? No, I was "on duty" 24/7 for 10 years and could not afford to let myself cry in the presence of my wife and we were never out of each other's presence because I was the caregiver. The conclusion might be that they were able to process their grief in pieces after each visit or update, if they cried then. Over time their grief was terrible but came in pieces allowing one to manage the end and after better. In my case, there was never a time to cry, to grieve, I was busy and consumed with her care. I could not let her see me cry, she would not understand why. On those exceptions when it happened it frightened her and caused fear and confusion. Now, the end has occurred and I am no longer constrained, so every picture, every thought, every sound, etc. triggers grief because I was never able to relieve it over the course of her disease. I am interested in feedback on my thoughts. Has anyone else found it hard to help loved ones understand the depths of our grief? Thanks in advance for any feedback or thoughts.
Comments
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I should also have noted that a part of this thought process would be to share with those going through their loved ones disease now. It might be helpful to know what they might experience at the end and after and consider if there is anything to be done along the way differently. Had I considered this before, I might have tried to get them to take time for us all to talk more openly or even using a therapist to help.
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Losing a lifetime partner and a parent/grandparent are very different. I had very little grief response when my mother died (she was 92) as it seemed a normal part of life. Losing my wife, is totally different. Our children's responses have been very different from mine and I think that is normal.
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I also had quite different responses to my mother at 93 and other relatives than I am experiencing with my wife. I expect my children and others to have reactions more like mine with previous relatives. My struggle is their difficulty understanding why I am reacting in this way. I don't want to just reject their efforts to get me involved or participate in every event that comes up but I also have to manage what I am going through. I encourage them to signup here and read the postings to help but not much luck getting them to do that.
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I just had this conversation with my step daughter. She lost her Dad. I lost my husband, partner and soulmate. Losing a parent is hard. Losing a spouse is devastating. I feel like I lost half of me. When you lose a parent you’re not living with them if you are married. You go home to your spouse. When you lose your spouse you go home alone. Everything reminds you of them. Everything. As caregivers we also have guilt. Did we do enough? We have anticipatory grief from the moment they are diagnosed until they pass. You want them to live but you pray they will die to end their suffering. Then you fell guilty for praying for that. Then we grieve again when they pass. The grief is both mental and physical. I never felt the physical grief with my Mom. As they say, “Grief is the price we pay for love”. The stronger the love the greater the grief. 😢💜🙏
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@SDianeL : A very good description of what one goes through after losing a spouse with dementia! You begin to grieve at diagnosis and at every little loss along the way. My biggest grief trigger was placing my DW in memory care. Then the finality of death. So hard!
Living Without You
Mary McCaslin
The milk truck hauls the sun up
The paper hits the door
The subway shakes my floor and I think about you
Time to face the dawning gray
Of another lonely day
Baby, it's so hard living without you
Yes, it's so hard
Baby, it's so hard
Baby, it's so hard living without you
Everyone's got something
They are tryin' to get some more
They got something to get up for, well, I ain't about to
Nothin's gonna happen
Nothin's gonna change
Baby, it's so hard living without you
Yes, it's so hard
Baby, it's so hard
Baby, it's so hard living without you
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
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MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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