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Sundowning

Hello, I’m very new to this group and confused on this newly diagnoses of Dementia for my mother! We are still going through a lot of appointments and tests and we don’t have a actual diagnosis of what type of dementia my mom has but they are leaning more towards Lewy body because she has a tremor on her hand!

My question is how does everyone deal with the sun downing and agitation, hallucinations! My mom is good all day until around 6-7pm she gets confused and asks for my dad when he’s sitting there with her! She asks what time is he off and how he’s getting home, she gets upset when we tell her he’s right there with her! Not sure if we are doing the right thing or not! I don’t know what to do! She eventually snaps out of it within an hour or two but sometimes it won’t be until the next day! It’s so sad to see this, it breaks my heart! Any advice would be really appreciated! Thanks in advance

Comments

  • SDianeL
    SDianeL Member Posts: 2,596
    2500 Comments 1,000 Care Reactions 1,000 Likes 500 Insightfuls Reactions
    Member

    Welcome. Sorry for the reason you are here. Sorry about your Mom. Sundowning is common and so are hallucinations & delusions. Learn all you can about dementia. Start with the book “The 36 Hour Day” and then search online for dementia caregiving videos by Teepa Snow or Tam Cummings. What I learned here is that we never argue or try to correct someone with dementia. They can’t comprehend they have cognitive issues. The second thing I learned here is that “You can’t reason with someone whose reasoner is broken” so we learn to use fibs. Your Mom may no longer recognize your Dad. People with dementia get lost in their timeline. So when she asks about your Dad just say he’ll be home shortly. He’s working late, he stopped at the store, the distract or redirect. Sometimes a snack works. Ice cream worked for my husband. I remember I read tips for sundowning online so I’ll try to find those again. Getting a definite diagnosis is very difficult. So much is unknown. Once you get the final diagnosis be sure to provide the Neurologist with a detailed list of your Mom’s behaviors and ask for medication for hallucinations & delusions. Risperidone helped my husband for awhile. The best type of doctor to manage medications for dementia is a Geriatric Psychiatrist. Get a referral to one if you can. I would post under the Caring for a Parent category rather than this General Topics category. Also read old posts under the Caring for a Spouse or Partner. There are more posts there. Cone back often for info and support or to vent. We understand what you are going through.

  • SDianeL
    SDianeL Member Posts: 2,596
    2500 Comments 1,000 Care Reactions 1,000 Likes 500 Insightfuls Reactions
    Member

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more