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What Is Looking After Yourself

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  • howhale
    howhale Member Posts: 161
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    Member

    So sorry for your situation and it reads much like mine did before my wife passed. I used the time before my wife was awake in the mornings until her sleep pattern changed and eliminated those windows of opportunity. I was finally able to find a couple caregivers who could work with AD patients to come a few hours to allow me time if only to sit alone and close my eyes. Just those few hours enabled me to carry on. I never did actually sleep and used the time for necessary things, groceries, bills, etc. But that little time sure helped. I hope you can find caregivers who can assist. I did have to go through a few to find ones who knew what to expect with an AD patient. Many only have useful experience with physically impaired, not mentally impaired, and those failed.

  • Abby627
    Abby627 Member Posts: 35
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    Member

    I’m just reading through posts and came upon yours. I have the exact same problem. They said I can’t get any help because my DH was “just in the Naval Air Reserves”. Like they wouldn’t have gone if they were called. It makes me so mad!

  • howhale
    howhale Member Posts: 161
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    Member

    That response from the VA just disgusts me. These men and women took the oath, stepped across that line, signed that blank check to our country to give all if required. That they did not get called to active duty should in no way diminish the significance and value of their service. What we do NOT do for our service people just absolutely tarnishes our country. We must do better for all our people and it needs to start with our military and first responders. So sorry you and others get this terrible treatment.

  • Colacho10
    Colacho10 Member Posts: 52
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    Member

    I'm a caregiver for my dad, and for a long time, looking after myself felt impossible, so I get you. In my opinion, you can never truly look after yourself, because my dad is more important in most situations. But, still, I have found some ways to not be engaged 24/7, and I am feeling better mentally since then.

    I learned how to use essential oils for "olfactory anchors". I'd use a specific smell only when I am taking a break, so that now just smelling it briefly helps instantly pull me out of a caregiver mindset. Another helpful thing was using certain gadgets or devices to help me out. For example, I set up the JubileeTV box, which helps me keep an eye on him remotely without installing a surveillance system. I finally feel comfortable leaving the house without constantly worrying about him. It has some other helpful features, like setting reminders, controlling the TV remotely, and making a video call even if the TV is off. That is all helpful in case of emergencies.

    Also, I discovered that I really needed to learn to delegate non-caregiving tasks to people who offered to help, like letting my friend do the grocery run or pick up the dry cleaning, so I could save my energy only for the things my dad needs me for. I am still trying to get a hold of that, since I always feel guilty about someone doing my responsibilities.

  • Maru
    Maru Member Posts: 244
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    Member

    I am an artist and have a studio in the loft. Right now, DH is alright spending his time watching sports and playing sudoku, so I have 4-5 hours in the studio. I have an alarm on the front door so I know if he goes out. I am only too aware that there will come a day when this will change. Our local kids have all volunteered to help and I hope that when DH's needs become more that they will come and spend a few hours with him so that I can get a break.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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