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In home care for parent- does not want help.. Los Banos, california

samz429
samz429 Member Posts: 6
First Comment
Member

hi everyone,


my mom is sliding quickly with memory and mobility issues. Still wants to cook and take care of inside of house. Memory problems are getting worse by week.. does not see this.. refuses care outside house. Need someone to come in periodically… where do I start?

Thank you everyone

Comments

  • JulietteBee
    JulietteBee Member Posts: 416
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    Member

    I am facing the same dilemma, except I already got my mom out of her house and into an IL facility, last year. I now need a way to bypass her resistance to having an HHA come in to help.🫂

  • H1235
    H1235 Member Posts: 1,694
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    If you haven’t read about anosognosia I have attached a link. It makes things so difficult. One of the biggest reasons mom couldn’t live alone was the anosognosia. She could not recognize her limitations and was putting herself in dangerous situations. You might try disabling the stove, but that’s only going to solve one problem. Without the ability to recognize her limitations who knows what other situations she might get herself into. Climbing a ladder to change a light bulb, mowing the lawn, lifting heavy boxes in the garage….. Do you have DPOA? If you do, you are probably just going to have to do what needs to be done and let her get mad. My mom said she would NOT go to Al and later refused to go to a nursing home, but when it came down to it she did (she was not happy about it). Medication can help, but it can take a bit to get dosage right. If you hire in home aides and she is so upset that you can’t get aides to stay, you may need to consider a facility. While my mom was furious about her move to al she enjoyed the social aspect very much. It was a good thing for her. It’s so hard to force a parent to do something, even if it’s necessary and for their own safety and benefit.

  • samz429
    samz429 Member Posts: 6
    First Comment
    Member

    thank you for leaving the post/article on anosognosia. Anew term for me, but my mom fits this profile. Refusal to go into see doctor, been 2 years. All ok with phone calls and videos. Her mind is changing so much.. nor her or her doctor doesn’t see this. Could anyone help me understand what is going on.

    Thank you

  • H1235
    H1235 Member Posts: 1,694
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    Member

    If she hasn’t been to a doctor, has she been diagnosed? When I took mom to her pcp they did a very basic test and mom did just fine. I sent the doctor a note with all my concerns. I had to insist on a referral to a neurologist. After the neurologist evaluated her she told us mom was not safe to live alone and should no longer drive. The pcp who had treated her for years was oblivious. Tell your mom whatever story you need to to get her to the doctor. It’s ok to lie if it gets her the help she needs. The DPOA I mentioned is very important. This will allow you to make decisions for her. There is no reasoning with a person with dementia. You will never convince her she needs care. You have to advocate for her and make sure she gets it, even if she doesn’t want it(the DPOA will allow you to legally do this). I have attached a staging tool that may help. There were so many things I didn’t even realize were symptoms. Dementia is about so much more than just memory problems.


  • SDianeL
    SDianeL Member Posts: 3,155
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    Member

    Your Mom should no longer live alone. It’s not safe. She could wander off. She is vulnerable to scams. She needs 24/7 care. A person coming in periodically probably won’t do. Read the book “The 36 Hour Day” which helped me understand the disease after my husband’s diagnosis. Also search online for dementia caregiving videos by Tam Cummings or Teepa Snow. Come here often for info and support. We understand what you’re going through.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more