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Hospice

CindyBum
CindyBum Member Posts: 682
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in Caring For a Spouse or Partner

It has happened. My DW has qualified for hospice. She lost 12 lbs in the last two months and can’t bathe herself anymore. That’s why she qualified, not because she is 6 months from dying or anything. Thought that might help some folks to know. Honestly though, I don’t see her making it to 2027.

I am both a wreck and incredibly relieved to have a better medical team around her. They’re already better at managing the medications than my geriatric psych was.

But, damn. I’m back to crying a lot.

Comments

  • jgreen
    jgreen Member Posts: 283
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    so pleased for you @CindyBum and your DW

    I am tearful for you too - mostly for the extra care you both deserve. You are a superb caregiver! Hang in there

    Prayers and hugs!

  • Jgirl57
    Jgirl57 Member Posts: 798
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    Sorry, but glad for some more help for you and DW. ((( Hugs))). This is not an easy journey for anyone.

  • Chance Rider
    Chance Rider Member Posts: 265
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    @CindyBum I’m sorry your wife’s journey has reached this point but glad for both of you that she’ll have additional support. Big Hugs

  • midge333
    midge333 Member Posts: 649
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    I am sorry you have reached this point in your journey but I am glad you have the help of hospice. Most people wait too long to ask for a hospice evaluation.

  • annie51
    annie51 Member Posts: 607
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    I know it’s very sad…unavoidably sad. You’ve been amazing and you’re doing what you need to do once again. We’re with you…

  • SDianeL
    SDianeL Member Posts: 3,172
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    big hug. 💜

  • Biggles
    Biggles Member Posts: 739
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    There are only two words - it’s sad x

  • cdgbdr
    cdgbdr Member Posts: 303
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    I have been following your journey but didn't expect this. I am so sorry for the pain you have, but like others, grateful for the care and support you will receive. Some days I wish DH would qualify so that he'd have more eyes on him. You are an amazing partner and caregiver

  • wose
    wose Member Posts: 366
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    All of your posts are invaluable and they reflect the truly wonderful caregiver you are. I’m glad you’re getting help but so sorry it’s come to this. Love,strength and many hugs coming your way💜

  • tboard
    tboard Member Posts: 252
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    https://alzconnected.org/discussion/74859/hospice

    I'll always regret not having my mother evaluated for Hospice care sooner than I did. My DH likely qualifies for hospice care. He stopped being able to bath himself at least 3 years ago but now he is incontinent, walks with a shuffle and has a great deal of difficulty talking.

    Hospice care is a good thing. It sounds scarier than it is.

  • CindyBum
    CindyBum Member Posts: 682
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    Thank you all for the wonderful support. I appreciate each and everyone one of you.

  • Goodlife2025
    Goodlife2025 Member Posts: 292
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    Cindy I hope the Hospice care extends to offer you some much needed and deserved supports. When I read on here it is often the little things we haven't yet considered that are much appreciated I hope they bring a bag of "tricks" that make a true difference to you and your DW.

  • persevere
    persevere Member Posts: 198
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    CindyBum, you did the right thing. I just posted something about hospice before seeing this. It’s good to see all the positive comments here and I too am glad I now have it. I’ve just got some mixed results I’m working through.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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