A series of changes and more isolation for me as sole caregiver
This is just me expressing feelings the only way I can right now. This week has been challenging. My husband's Medicaid application was approved, but the part that funds home and community based services is still pending. I applied in August, and I was told that it will probably be February before we actually get any services.
His sleep patterns have changed. I get up early with our two dogs, and he used to sleep for an hour or two later. That was my time for having coffee, reading emails, paying bills, taking a shower, and just getting ready for the day. Now he's up early and no naps, so I've lost that time. He gets suspicious when I'm on the phone or computer, so I'm very limited in communicating with the outside world.
During a neighborhood walk, my husband didn't want to wait to cross the street safely and would try to rush across when traffic is coming. Then, he refused to turn down our street, and tried to get into neighbor's homes, ones that have security systems. I could tell by his level of anger that he would've shoved me if I tried to block him. He went down an alley and tried to get through back gates. I got him headed toward home, but when he saw a young couple in their driveway with their front door open, he tried to go into their house. Fortunately, they were very kind and understanding. The young man gave him a hug and said, "It seems like you're having a hard day, your house is just down the block there."
Now I'm avoiding the subject of walks and don't feel at all confident taking him out of the house. It's only been a couple of days, but I feel really trapped in the house and yard. It's been a long slow progression starting about 14 years ago. This is also almost exactly one year since he became unable to stay alone at home, even for brief periods of time. I ordered grocery delivery today since he said strange things to people during our last trip.
On top of that, my very dear eight year old dog was diagnosed with lymphoma this week. I have an appointment with a veterinary oncologist, but the earliest appointment I could find is on 12/31. I'll have to take my husband to every appointment since I have no one to stay with him. But sadly, it's progressing so fast I'm not sure she'll make it that long.
I emailed his doctor about recent changes and her opinion is that it's time to start looking at facilities for him. Fortunately, his new medical team has social workers to assist and I have some limited family support to look at placements. Not feeling the holiday spirit right now.
Comments
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oh my! Sounds like outdoor walks in the neighborhood might now be history. We no longer walk in local parks because my DH wants to get into everyone’s business and will not let a conversation end. Not getting your time alone at home since his sleeping pattern changed is frustrating. I do try and stay up an hour later than mine. I always tell him I am going to finish up the dishes after I get him settled in bed. I hope your home services come thru soon. Sorry about your dog and it is never hurts to check out facilities .
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so sorry. We understand how you feel. Hope you get the help you need. Hugs. 💜
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Oh my. You do have your hands full. Like you, my morning quiet time is when I get things done.
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My heart goes out to you. 💕
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Dear @Mitsu2
So sorry you are having such a bad week! It is good your physician is responsive to your emails. Perhaps some medication adjustments could help with DH’s recent behavior changes? That could help relieve you a bit while you wait for Medicaid approval and possible placement.
I am not where you are at this point in time. But I have seen several terrific responses in other posts that list questions and things to look for when visiting facilities or interviewing for home-care. You might see if you can find some of those responses and create a list. And it is great you have family willing to help. Visiting and assessing care centers would be a great ‘job’ for them. At least as a first pass so they could narrow down the field for you as you make the final assessment and decision.
Hang in there! Come back and vent as often as you need. Sending you are warm hug! 💝
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So sorry for the new limitations on your walks. I hope a solution is found soon. I really count on the time my spouse is sleeping. Not sure what I would do without that time.
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