Hospice opinions

Sounds like you need to come to an understanding just what the goals are - cures aren't happening , just comfort and assistance. What tasks can they perform during visits? What treatments do they think will help provide the comfort and assistance?

As in a prior post , reconsidering their suggested Valium if they think it will calm your wife and you [insert smile emoji]- what's the realistic downside - your wife already has the incurable disease and your nerves are frayed at time - making things easier for you both why not try at low doses until you see improvement or if a problem you slowly taper off. I get you don't want to "make things worse" but haven't we all already been thrown in the deep end , I'd try any water wings they suggest to stay afloat . You trying may make them more compassionate too if they see you are open to trying new approaches - with caution.

Or you can try another hospice for a better fit.

My experience…

I kept the neurologist on the team

Fired the first Hospice

Loved the second one.

While there is a mandate for all Hospices the staffs make a difference. I think you can switch once within a 90 day period. Hospice does not mean training in caring for perons with dementia!!!!