New diagnosis
Comments
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So sorry to hear of your DH’s diagnosis. You have come to the right place for support as you go through this. This forum has helped me and my DW who has Early Onset Alzheimer’s diagnosed 3 years ago at the age of 53. Read all you can about this disease and start early on getting your POA and DPOA while your DH can still understand and sign the proper documents. We got all our affairs in order right away even though I thought we had plenty of time. Glad I did as now my DW Alzheimer’s has really progressed in this past year. Continue to lean on all of us as your journey continues. ❤️
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I can’t imagine how hard this must be for you. You’re dealing with so much at once, and it’s completely understandable to feel overwhelmed. I’m thinking of you.
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Good morning. I am so sorry you are dealing with both alzheimer's and a blood cancer. My husband is 74 and is also at the moderate stage and has a different blood cancer, multiple myleloma. This is a wonderful site for information on alzheimer's/dementia. He was diagnosed with mild cognitive impairment 6 years ago. The multiple myeloma diagnosis was made 4 1/2 years ago. Three months later, while getting ready for a stem cell transplant, we had a house fire and had to find a new place to live. As previously suggested, see an elder care attorney and get all your documents in order. We jsut finished this process which took us 6 months. My first word of advice is start a notebook, if you haven't already, to take with you to all appointments for both oncology and neurology. The specialties live in two different worlds!! Don't let your cancer team push you into treatments that you haven't researched and discussed with family, neurology and your primary care provider. My husband's myeloma is overdue to return. He has a CT scan scheduled for 1:30 today so we will have more information shortly. The oncology team has to be reminded constantly that my husband has significant memory issues. They do not look at the whole person. Having alzheimer's makes everything harder. We have talked about the CT scan today many times but just getting there and accomplishing that is and will be exhausting. My husband had his last MRI about 9 months ago and said he would never have another one. Be sure the technicians are aware of your husband's memory issues and ask to accompany him as far as they will let you go so you are close by. I can message you directly if you are okay with that as I have other things I would be able to share that might be helpful. Hugs to you as you begin this journey. Lean on the people on this site for guidance and support. Barb
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welcome. So sorry about your husband’s diagnoses. Ask the doctor if there is anything they can give him to calm him for the MRI. While you are waiting, learn all you can about Alzheimer’s. Read the book “The 36 Hour Day” which was recommended by a nurse come back often for info and support. I found doctors not very helpful. The people on this online community helped me more than anything.
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thank you all for input. We have met with lawyer and have everything in place. Our house was full with our 3 adult children and spouses along with a 4 and 2 year old grandchildren. He was very overwhelmed at times and seemed to get agitated. He went out with our son and left restaurant and just started walking home. I called him and he calmed down and let our son drive him home. I have seen a sharp decline over the past few months.
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Definitely keep his cognitive impairment first in discussions with his oncologist with regard to his blood cancer. Talk about what you will and won't be willing to do at each step in the process. Oncologist and neurologist are the experts in their fields, but you are the expert on your husband and best at seeing the big picture for him. I'm a heme/onc nurse and can tell you that in many cases, CML can be managed well for a long time with oral medication. The key will be how well he tolerates the meds and managing any interactions with other meds. If the pills are not working, you may have to make decisions about more aggressive treatment, blood transfusions. I'm sorry that you are managing two difficult diseases. Alzheimers is the tougher one IMHO.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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