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Panic mode

persevere
persevere Member Posts: 207
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in Caring For a Spouse or Partner

Ok, I know we’ve all had some pretty harrowing experiences with all this. So we took, what I knew, was going to be our last trip to be with kids at Christmas. DW is in very late stage but always travels well because I leave early and she sleeps most of the way. Well, not this time on the way back. Like a caged animal. So we stop. Try to get some food in her which is always a challenge. Went like I expected, terrible. We get back in the car and the parking brake is on and it won’t disengage. I had to pull up chtgpt and go through 5 methods to finally get it off. Talk about panic mode. Holy….

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  • SDianeL
    SDianeL Member Posts: 3,186
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    sorry your trip didn’t go well. This disease takes so much from us. Glad you’re home safely.

  • Call me Gram
    Call me Gram Member Posts: 134
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    I had the same thing happen to me with my parking brake, Persevere. However, my DH was home and I had two friends in the car with me. Although it was embarrassing, I'm sure it was nothing like you must have been feeling.

    Glad you were able to disengage the brake. I hope your visit was enjoyable and worth the trip.

  • jgreen
    jgreen Member Posts: 298
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    Hang in there @persevere.

    Seems like the holidays add more pressure to an already difficult situation. Glad you are home safe.

    Hugs💝

  • Maru
    Maru Member Posts: 334
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    https://alzconnected.org/discussion/74940/panic-mode

    A Rosanna Dana moment…if it in't one thing it's another and sometimes all at once. I am familar with that helpless feeling and dealing with DH who just keeps on merrily chatting on about everything except the difficulty that I am having. Hope that the rest of the visit went well.

  • CindyBum
    CindyBum Member Posts: 691
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    What an amazing thing to take on for your DW.

    I totally get the panic mode when traveling with a poor LOWD in a car. It's so hard when they get to that caged animal stage. So glad you made it home safely.

  • Chance Rider
    Chance Rider Member Posts: 271
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    What a scary experience having your DW get so upset on the trip home. Smart thinking to use ChatGPT for a solution to the brake issue. I need to explore that as an option for answers myself.

    My parking brake and steering wheel locked up the other day but luckily I was alone in the truck and on my own property, about a quarter mile from the house. After calling our local GMC dealer found a quick and easy solution. Had they been closed I’d have been at a loss.

    Thank you for sharing your experience and solution.

  • aglita
    aglita Member Posts: 8
    First Comment
    Member

    GUIDE program offered through Medicare-

    Hi just wondering if anyone has signed up for the GUIDE(guiding an improved dementia experience) program for their loved one? It started in July 2024 and is a pilot program that is supposed to to run for 8 years. Only certain providers have signed to be part of this program. the program is supposed to help people with Alzheimer’s disease or related dementia and their damil Caregivers get support they need to stay safely in their homes for as long as possible. You have to have Medicare part A and B as your primary source of insurance to be eligible.
    if anyone has just wondering how your experience with the program has been?

  • jgreen
    jgreen Member Posts: 298
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    https://alzconnected.org/discussion/comment/261955#Comment_261955

    Hi @aglita

    Welcome and thank you for the info.

    You might get more views and responses if you post this information in a new chat rather than in a reply to another’s post. On my screen, when you open up the discussions, there is a yellow/orange button towards the top right that says ‘New Discussion’. Click on that and you will start your very own discussion.

  • persevere
    persevere Member Posts: 207
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    https://alzconnected.org/discussion/comment/261954#Comment_261954

    I use chtgpt a lot Chance for many things including the journey with my DW. I ask it about meds, behaviors, etc. I find it very useful but you can’t let it take over. But anything from fixing things to cooking to whatever, it’s great.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more

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