Taking it away
Mom is in an amazing Alf. Over the last 4 months, I notice a "progression " in her memory, which before we had half hour before she would forget conversation, now it's immediate. She used to come to my house every Sunday to spend the day, now after 30 45 min she wants to ho home. Even on holidays. Beyond that she has been hiding her wallet and jewelry now for a year , recently it daily and has complete anxiety over it, so I wind up going every day to find it. I finally put a tracker in wallet which is Amazing. We replaced all good jewelry with fake costume jewelry so if lost not problem. But the last two weeks now she is hiding her wallet, calling me panicked, I go there track it find it, by the time I get home she "lost" it again and has no memory i was literally just there. This has happened 3times a day. So today I made the decision to take the wallet from her. She was not happy, breaks my heart. Its like she did something wrong, I know it's not her fault. I just feel like all the anxiety when she thinks it's lost/stolen is not good for her. She cries, and panics. But now I'm questioning my decision. I'm not sure what to do. I read as much as I can on this, I want her to be independent but we cannot continue doing this. Ughhh I also think she might be starting sundowning. She mentioned she's up at 4am. So this is new. Dementia sucks.
Comments
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I think she is probably going to forget you took the wallet and you’re going to be right back where you started. I would try to focus less on the actual wallet and more on a story/fib that will ease her anxiety. I think I would try something along the lines “Oh I’m sure it’s around there somewhere. We will look for it next time I’m there for a visit.” Pretend to look at the next visit only if she asks. You can’t find find it so tell her you need to get going and you’ll help her look next time. Again assure her it will turn up eventually. Change the subject, offer a treat. Or maybe tell her you must have picked it up by mistake at your last visit and apologize. Assure her you will bring it next visit, then forget. Unfortunately this routine might need to be repeated with each visit until this obsession is over. If the anxiety continues and you can’t seem to find a way to calm her, you might want to talk with her doctor about medication. I think anxiety medication can also cause drowsiness, so that might be a good for her too. I totally agree dementia is awful!
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@lanie68ny
Given her recent progression, I see these options:
Disappear the phone. If the facility needs to get in touch, they'll call you. If she needs to make calls, she can use your phone when you visit.
If you're not ready for that step, get a cheap burner phone. Leave the ringer off, leave her a personalized calming outgoing message and check it no more than once daily when you are up for it.
When you visit, bring along a treat of some kind to redirect this anxiety.
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losing things is common with dementia. They hide things or throw them in the trash thinking they are putting them away. I would remove the wallet and the phone. Fib to her. Then distract or redirect. You mentioned she is in an ALF. Is it a locked memory care with 24/7 care or do they just check on her periodically? I think based on her behaviors it’s time for a MC facility.
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I would suggest you take, and keep with you, any credit card, debit card, cash, or checkbook that maybe associated with the anxiety she feels, surrounding the "lost" wallet. If nothing of importance is kept in there, it is then easier for you to tell her that you will help her find it next time you are there.
Sadly, there is no such thing as "Independence" when it comes to a loved one having Dementia.💔
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I'm so sorry @lanie68ny , I remember very well when my sister was at that stage. With her, it wasn't her wallet (I'd disappeared that, and the credit cards, long ago), it was her phone. She'd misplace it, forget how to use it, call me 30 times a day, etc. I ended up disappearing the phone too. I told her it was in the shop getting fixed, and I just kept repeating that fiblet over and over until she forgot about the phone.
You can probably do something like that with your mom's wallet. Depending on how your relationship is with her, you might try something like "oh, I found it, it's safe. I'll bring it over next time I'm here." At least she'll know it's in a safe place and she'll be getting it back soon. That may take the edge off of some of her stress. Of course you'll just keep the wallet with you, but you keep on repeating the fiblet, "I have it, it's safe, I'll bring it back."
It's very strange to experience someone with dementia forgetting about an object that was once important to them. I didn't think my sister would forget about her phone - it was always glued to her. But she did. Your mom will forget about the wallet in time.
Again, I'm so sorry you both are where you are - dementia really does suck.
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You're going through what I recently went through, and I did what you did. It didn't feel good removing Mom's good jewelry to put it in a safe place, but I know she would rather her family have it than have it stolen. I did this early in her diagnosis, and she agreed this was a good idea, since she was already thinking people were stealing her eyeglasses. (She was hiding them from herself.)
I did the trackers on her keys and wallet, and we had similar instances where she would immediately hide it somewhere from herself and get upset. They were a life saver.
When she moved to memory care, we told her she was there temporarily for PT, and wouldn't need her wallet. The rare times she's asked about it, I told her my brother had it. He takes care of all her financials, so this made sense to her.
I swapped out her old AL apartment keys with some other random keys, and I left the tracker on there. It was useful in the beginning, so I could see where she was in the MC building - hairdresser, PT, etc., because she would still carry her pocketbook. After having been there 5 months, I've noticed she is carrying her pocketbook less and less.
With the progression of dementia, they forget what things are for. She no longer wears her eyeglasses and no longer frets about someone stealing them. Also, we didn't install a phone in her MC room. She's only mentioned not having a phone once, and that was early on. There comes a point in dementia where out of sight equals out of mind. It's very sad, but it's also a blessing.
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To some degree this is just what happens, not a lot to be done. If it's not the wallet it will be something else, or something imaginary that stresses her. It's a really hard phase of the disease. My mother was always losing stuff and stressing over it and intentionally squirreling it away and forgetting where it was. We ended up removing everything of value from her wallet and purse (and from her life, I guess.) I filled her wallet with those fake cards that come with junk mail, some old insurance cards, and a few dollar bills. But like I said it's not really about the wallet or one item, it's about her failing brain and the anxiety associated with that, with being aware she is losing her faculties and feeling lost in the world. It's also common to withdraw from mainstream social activities, that becomes too much to be out of their surroundings. If outings stress her out then don't do it, sad as that is. There comes a time where they just need their routine, their familiar setting, and no new people or experiences. Short easy visits with close family in her apartment. After a while we had to stop bringing mom to family gatherings even on Christmas. We had a quick session together at the facility with just a couple of us and that was it. it wasn't fair to her anymore to put her in those settings. It may also be time to consider memory care, where the staffing ratio is higher and there are more supports, more intervention to keep them occupied and engaged. After an initial (very difficult) transition period, my mother did much better in memory care. The environment is more controlled and she felt less lost in the world. Every day is Groundhogs Day (like the movie) and most people with dementia thrive on routine.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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