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Will my dh ever understand he has dementia?

nanc
nanc Member Posts: 9
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Is there ever a time my husband will realize and accept that he has dementia? After at least 10 years of a slow decline, I’m just worn out from it, and incredulous that he’s still adamant he has no issues with memory. He screams that it’s ME who has the problem. To the outside world, he can seem pretty normal. And he’s not doing wildly inappropriate things—which is almost harder to reconcile. Does anyone else have these feelings of living in a fantasy world where they as caregivers are in a constant state of gaslighting from their mates?

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  • tonyac2
    tonyac2 Member Posts: 240
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    What about meds, is he taking anything to help calm him down? My DH takes Seroquel and Zoloft. Has helped a lot.

  • JulietteBee
    JulietteBee Member Posts: 430
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    Unlike the others, I would not say there will never be a time.

    My DM has had symptoms for the past 3 - 5 years, but officially diagnosed in December 2024. I too, initially, thought she was in denial until I learned of anosognosia from this group of Dementia specialist.

    My mom, like myself, is a retired registered nurse. She just saw a neurologist 10 days ago. I took mom to the appt with the CD & written report from her last MRI. The doctor reviewed the images in her office, on her pc. Strangely enough, she thought to take pictures of a few of them. When she came back to the exam room, she showed my mom the pictures and told her what they indicated. You know they say, "A picture is worth a 1000 words?" In mom's case, it was. The images somehow have been burned into her brain and she NOW has started telling family and friends that she was diagnosed with Dementia. Needless to say, she insists that this is the first time a doctor had ever told her she has Dementia.🤔

    Maybe your hubby could benefit from seeing what his doctors are seeing as well.❓️❓️❓️

  • nanc
    nanc Member Posts: 9
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    Thank you for your help. The strange thing is how LITTLE anxiety he seems to ha

    Yes, maybe that would help. Thank you.

  • H1235
    H1235 Member Posts: 1,751
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    edited January 1

    I doubt he will ever accept that he has dementia. Even if he does, that doesn’t mean he will understand his limitations. My mom knows she has dementia and would not argue with that. The problem is she believes she is in the very very early stages. Her symptoms are related to judgment and decision making, her memory is not so bad (she has vascular dementia). She is so incredibly confident in her ability to do things she can’t. A person that speaks with confidence can be very very convincing. Others don't see the issues or ask her questions about her plans that would reveal the problems. She wanted a toaster oven in Al. Many residents had them so staff said sure. When I actually asked questions about this, she tells me she wants a full size toaster oven (wouldn’t even fit on her counter) so she can bake cupcakes (she is diabetic) and make some of her own meals (paying a small fortune to have meals prepared for her and bring in raw meats was not happening). Even when the deficit is right there in front of her she has an excuse. The tv is not working right, her cell phone is messed up, her hearing aids need to be fixed. She never says I’m having trouble figuring this out. A lot also gets blamed on me. If I would just bring her the sewing machine she could finish her quilt, she is perfectly fine to live on her own, but being the horrible, controlling daughter I am, I take away all her freedoms. It’s hard always being wrong and getting blamed for everything (it messes with your head and makes me second guess myself). So far anosognosia has been without question the most difficult symptom to deal with. Sorry I got off on a little rant there. So no you are not alone. I will attach an article on anosognosia.

  • LisaK61
    LisaK61 Member Posts: 5
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    I am so trying to do thus. It is soooo hard.

  • LisaK61
    LisaK61 Member Posts: 5
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    A big YES!!! And all of the comments I can relate to. Hate that we are all in this, but glad I'm not alone.

  • LisaK61
    LisaK61 Member Posts: 5
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    I can definitely relate and now my health is going downhill. Stress...trying to do what everyone says. Don't argue, don't point out the logic, just let it go. I have not mastered this yet.

  • JulietteBee
    JulietteBee Member Posts: 430
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    edited January 2

    That is a profound & eye opening video clip. Thank you for sharing.

  • Iris L.
    Iris L. Member Posts: 5,373
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    SiberianIris, thanks for posting the short video!

    Iris

  • H1235
    H1235 Member Posts: 1,751
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    I love the 24/7 improv play. Perfect description. The movie is a great resource. I will be adding this to my favorites and sharing it often. Thank you!

  • Appletree4
    Appletree4 Member Posts: 9
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    yes I am in the same boat. My DH has diagnosed 2022. Has not filed taxes since 2016.

    Breaks everything , has bad temper . Blames me for his problems. Wonder why I get upset and argue.

    He has cerebral amyloid angiopathy IR.

    I resent him.

    He is out of control

  • SDianeL
    SDianeL Member Posts: 3,193
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    have you read the book “The 36 Hour Day” it helped me after my husbands diagnosis. Also search online for dementia caregiving videos by Teepa Snow or Tam Cummings. They are very helpful. It’s the disease talking, not him. I learned 2 things here: you can’t reason with someone whose reasoner is broken and never argue with someone with dementia. Learn all you can so you can help him. We know what you’re going through.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more