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Quite shocked

TrudyL
TrudyL Member Posts: 1 Member
in I Am Living With Alzheimer's or Other Dementia
Hi....my dr. was not expecting a diagnosis of Alzheimers. (neither was I!) He's a great neurologist and he could barely talk. We are going to move into an retirement community that has help with memory, etc. I just hate thinking about Az every moment. Thanks for listening.
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  • eaglemom
    eaglemom Member Posts: 1,030
    Legacy Membership 1000 Comments 250 Likes 100 Care Reactions
    Member

    Welcome TrudyL. I'm sorry about your diagnosis, but don't just give up the ship, so to speak. Many many people with a diagnosis continue to live at home for quite sometime. (My DH is one of them. It's been 14 yrs since his diagnosis. He functions very well, but he wouldn't be able to live on his own. Meaning he couldn't cook for himself, etc. Otherwise he participates in activities, we go places, all be it a a slower pace.)

    I'm certainly not trying to discourage you from moving, I'm just saying the best line you will ever hear is this: if you've met one person with ALZ you've met one person. It simply means each person is different with this disease. Each on reacts differently. Stay healthy, stay active and keep your mind busy.

    eagle

  • NewtotheGame
    NewtotheGame Member Posts: 1
    First Comment
    Member
    Hello, I too just had a surprising diagnosis. The only thing that I like about it is that the Neurologist said I was "very high functioning". I told my family that I'd use that quote a lot. I love the "each per is different" comment from eagle. It may be uncomfortable because there is no one right path to follow. But it gives us freedom to learn what works for us. This is my first post... Marianne
  • GEH
    GEH Member Posts: 71
    25 Care Reactions 25 Likes Second Anniversary 10 Comments
    Member

    Welcome Marianne, to the club no one wants to belong to.... BUT we are all here for you. 💖 I hope you find everyone here as wonderful as I do. Please feel free to share as much or as little as you are comfortable with. If you are like me, you may have like a million of questions. Please feel free to reach out. I have learned so much from everyone who post on this site. GE

  • saradooley
    saradooley Member Posts: 6
    First Comment
    Member
    https://alzconnected.org/discussion/74833/quite-shocked
    https://alzconnected.org/discussion/74833/quite-shocked
    https://alzconnected.org/discussion/74833/quite-shocked

    I too was diagnosed three months ago as a result of a seizure, not because I had any symptoms. I am with a doctor at Keck-USC who is likely going to start me on Lequembi soon if it’s appropriate for me. My anxiety is through the roof, although I am getting therapy and taking medication for anxiety. I was adopted so I have no experience whatsoever with this disease in my family. Only two friends who have passed in really agonizing situations. For most of my adult years, I have lived a very healthy lifestyle. I feel alone, although I have a lot of family and friend support. I’m a very proactive person and I feel there’s basically nothing I can do here and it’s daunting. Has anyone in this group found any personal coping strategies that help them through this? I am 74.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more

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