Facing a Diagnosis this Week
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Reading your response felt like I could have written it myself except my husband hasn't had the infusions yet. He's going to start taking the Donepezil. Did your husband take any of the oral medications like Aricept/Donepezil before doing the infusions? I know how it feels to be weepy a lot. It seems like there is something almost every day that breaks my heart and brings me to tears. It's so hard and surreal. I'm now finding that my husband is walking around the house aimlessly and can't find things to do. I'm hoping to find something or someone that he would accept who could come to the house to help him out so I can work and run errands.
I wish you strength and wisdom to deal with this monumental challenge.
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So sorry for your DH, sounds like you are doing everything you can, thanks for sharing. Are you the sole caregiver? My wife was diagnosed last year. So far it is not too bad. I just retired and can do the house chores and take care of dinner cooking. My wife still is able to do some cleaning and takes care of her breakfast and lunch. She was ok with surrendering her Drivers License and replaced it with a Colorado ID. Our next things to do is for me to get a lawyer for POAs and sell our house and buy a single story. She can still walk up and down the stairs but is very slow and very careful. It would be so much easier with everything on one floor. I need to do more research on that though, I don't want to sell, buy a single story house and then find out that after a couple of years that we need to move again to a place with assisted living help. I want it to work for us in a single story house and do everything possible to make that happen, but I need to be proactive to find out what it would take. Any feedback would be welcomed about anything ALZ related
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Hi Bill, and welcome! When you're considering buying, make sure to choose a place that you will want to end up. Our spouses don't really notice after a certain point, but the caregiver is the one left in the house after the spouse goes to mc or passes, and we have had a few on this board that would have chosen differently for themselves.
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I am the caretaker and, in spite of several chronic conditions that I have, at age 85 I am still able to take care of most things. Of course, that could change in a heart beat, which is why I wear a personal alarm. My DH still seems normal 90% of the time. Unless you knew his personal history, you wouldn't catch his confabulations.
That said, I know that I will eventually have to have help. I am praying that I will be able to care for him here at home until the end but….With the help of one of our local kids (who are helpful) I will be lookig into Assisted living and Memory Care for him, should I become incompacitated or die, and will put his name on waiting lists. (Important, even if you think you won't need to do that).
As to moving…we moved from CO to TX a year before he was diagnosed. In retrospect, he was already exhibiting a lot of symptoms. If we had to do it over again, I might have opted for a large apartment or a Condo where I wouldn't have to worry about yard and house maintanance. Now, all that is on me.
There are ways you can stay put if you either have family willing to actually help or if you can afford to hire help, unless they become unmanagable. Good luck to you in your journey.
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Thanks for the feedback and again for sharing, especially concerning moving . I know we have to move out of this house with 3 flights of stairs, but will really think it over as to where we go and what kind of place we end up in. Everyone is different but that fact that your DH seems normal 90% of the time gives me hope that my DW will be the same. Good luck to you!
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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