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In my early 60s. At the beginning of this ..

Justme/
Justme/ Member Posts: 3
First Comment
Member
in I Am Living With Younger Onset Alzheimer's
Hi,
Are any of you out there going through what I am? Very mild symptoms, waiting for complete diagnosis. Anxious and frustrated.

Comments

  • NanaHobbit
    NanaHobbit Member Posts: 2
    First Comment
    Member
    https://alzconnected.org/discussion/74934/in-my-early-60s-at-the-beginning-of-this

    yes! labs showed the possibility and now waiting for petscan - thankfully it’s scheduled now

  • Justme/
    Justme/ Member Posts: 3
    First Comment
    Member

    Waiting is so hard. What labs did you have?

  • Justme/
    Justme/ Member Posts: 3
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    Member

    My MRI shows prominent biparietal atrophy. Four years ago MRI was clear and brain was healthy.

  • lindajny
    lindajny Member Posts: 24
    10 Comments 5 Likes 5 Care Reactions
    Member

    waiting is so hard. I’m waiting on the pet scan myself. I’m scheduled for February 3rd. Blood test markers came back high so it required the pet scan. Are you seeing a neurologist?

  • Roxygirl
    Roxygirl Member Posts: 17
    10 Comments
    Member

    my diagnosis was quick after getting the blood test results which confirmed EO Alzheimer’s. I was showing mild cognitive decline the past several years though.

  • lindajny
    lindajny Member Posts: 24
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    Member

    How are you doing? Are you on any medications?

  • Roxygirl
    Roxygirl Member Posts: 17
    10 Comments
    Member

    I started on Aricept back in December which seems to be helping. Still processing very hard but trying to live healthy and not let the diagnosis define me!

  • lindajny
    lindajny Member Posts: 24
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    16 days left until my PET scan- Yes I’m counting the days. Seeing a new neurologist who told me the scan would be positive or negative so no ambiguity. He said I was at a fork in the road right now and depending on the results I will go left or right. Positive will be the left path negative the right path. Obviously I’m hoping for the right path. My sleeping pattern has gotten increasingly worse only getting about 4 hrs every night. I’m exhausted

  • 66 with MCI
    66 with MCI Member Posts: 2
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    Member

    After seeing some posts I must have been lucky on my PET scan. It was ordered on a Monday and the lab had a Wednesday cancellation. Unfortunately I wasn't lucky with results. The scan confirmed the suspicions, MCI. Now infusion theory has been recommended. I am concerned about the side effects of either of two drugs. Has anyone had experiences, good and bad, they are willing to share?

  • Constance1
    Constance1 Member Posts: 17
    10 Comments
    Member
    Just received blood test results last night and I’m waiting to hear from the neurologist. Results: high likelihood of brain amyloid plaques and is therefore consistent with a neuropathological diagnosis of Alzheimer's disease (AD). I have had mild cognitive impairment since August 2018. Diagnosis of probable lewy body dementia in fall of 2019. I started on the Exelon patch which has helped and I’m now at the highest dose.
  • Constance1
    Constance1 Member Posts: 17
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    Member

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  • Constance1
    Constance1 Member Posts: 17
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  • Michele P
    Michele P Member Posts: 354
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    https://alzconnected.org/discussion/comment/261870#Comment_261870

    My husband was also able to reverse his MCI with no underlying neurodegenerative disease. We attribute the reversal to Brain HQ online games that rebuilt brain neurons, plant based diet, foods that break through the brain blood barrier, and the rest that you mentioned.

  • IngridS
    IngridS Member Posts: 27
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    None of my doctors have mentioned PET scans. I’ve been diagnosed through my spinal tap and have had several MRIs, and I will also get baseline ones this week because I have my first Leqembi infusion the week after. I live in a small town, but my options are the local hospital, a larger one 45 minutes away (infusions there), and several medical facilities with specialists 1.5 hours away. Is there a need for a PET scan at this point?

  • Roxygirl
    Roxygirl Member Posts: 17
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    Member

    probably not as long as you have a firm diagnosis. I had to get a scan because the first blood test came back in conclusive.

  • IngridS
    IngridS Member Posts: 27
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    https://alzconnected.org/discussion/comment/267183#Comment_267183

    Thanks! I thought as much. I’ll ask when I get my MRIs tomorrow.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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