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How long has it been

BPS
BPS Member Posts: 393
500 Care Reactions 250 Likes 100 Insightfuls Reactions 100 Comments
Member

I don't know any of you but I have told you more about me and my situation then I have told anyone else in the world. That seams kind of odd to me. I can't tell my own kids what is and has really happened. So I would like to share more about the people that I shared life details with. My wife of 50 years (we got married when I was 18 and she was 20) was diagnosed with early onset Alzheimer's 10 years ago she was 62 years old. I sold my business that I enjoyed 3 years ago to care for her. 2 years ago she had a stroke and moved straight from rehab to memory care in Sumner WA. She has been on hospice for a couple of months now. I go see her almost every day as she continues to decline. It seems like there was no life before Alzheimer's and I don't have any idea what life will be after Alzheimer's. I haven't posted often but have read a lot and thank you all. This site has been a great help even though sometimes it is a little depressing because this disease is so terrible. I will keep reading Thanks.

Comments

  • Kat63
    Kat63 Member Posts: 208
    Fifth Anniversary 250 Care Reactions 100 Likes 100 Comments
    Member

    Thanks for telling us more about you and your DW. I agree this site has helped me more than anything else while taking care of my DH, now in our eleventh year. My DH is now 78 and I am 69. We have been married 42 years. My DH is still home with me as his caregiver and have had hospice care for over 18 months now. He is just on a slow steady decline which at this point could go on for years. It hit me the other evening he is wasting away right before me. He has consistently lost a pound or two every month for a few years and his wedding ring, which was so tight on his finger and was thought would have to be cut off some day, is now loose on his finger and afraid in the near future will slide off his finger. I too don’t know what my life will be like after, and I don’t let myself think too much about our life before this horrible disease, as that hurts too much. (I’m sure that will hit me after his journey ends) I just focus on each day of doing the best I can to care for him now.

  • jgreen
    jgreen Member Posts: 192
    100 Care Reactions 100 Insightfuls Reactions 100 Comments 100 Likes
    Member

    Dear @BPS and @Kat63

    I have not been on this journey nearly as long as you. Thank you both for sharing a piece of your stories with me/us. It seems to me you have wonderful memories of days gone by. I do hope they will surface again and bring you comfort during the last stages.

    One thing I have learned from this wonderful group is to take one day at a time and see if you can find one thing to smile about each day. Sometime for me it is reading about a tender moment or humorous episode on this forum! 😊. Journaling or sharing stories with us is another way to bring a little joy back into your lives.

    We all care for and support one another. Hugs! 💝

  • trottingalong
    trottingalong Member Posts: 916
    Ninth Anniversary 500 Care Reactions 500 Likes 250 Insightfuls Reactions
    Member

    Like you, I have shared more with people on this group than anywhere else. I’m 69, my husband is nearing 82 with other health issues. I, too, wonder about life after. It scares me to be honest, but at the same time I have given up so much that I hope to get some of it back. But for now I try to keep it at one day at a time.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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