Hospice/burned out.

Big Papa2760 · February 22

My DW is in hospice now. She doesn't really understand what is happening to her. She doesn't eat regularly and doesn't sleep. Her skin is turning a yellowish color. She can only stand up to use her walker if someone is there to help lift her, then she can take 3 to 4 steps before sitting down. The care home is wonderful for her. They only have 4 women and all of them have some degree of Dementia. It's so hard to see her every day. All she can do is sit on the couch and lean into me so I can hold her. She says she feels safe when I hold her. She doesn't much other than to please hold and stay with me. This is so hard. I hate Dementia.

CindyBum · February 22

Dementia sucks.

Big hug

mom2boyz · February 22

I am so sorry. This disease is so unfair. She is safe and her needs are being met. Just know that you are doing what's best for her. Sending warm thoughts and prayers for you and your wife

Biggles · February 23

Agree dementia sucks. Hold her, keep her safe, my tears are falling for you.

jgreen · February 23

So very sorry @Big Papa2760

Sending YOU warm hugs 💝

Goodlife2025 · February 23

There are not enough words to describe this agony called dementia. Hold her close Big Papa sometimes it is all we can do……

SDianeL · February 23

So sorry. Keep talking to her and telling her you love her. Hugs. 💜

Big Papa2760 · April 6

https://alzconnected.org/discussion/75428/hospice-burned-out

Big Papa2760 · April 6

April is here. No change, I feel like I'm in a revolving door. I go to see here every day and all I can do is hold her hand or give her a hug. I don't know if its burnout or what. How many other have gone thru this. Hospice sucks.

SDianeL · April 6

https://alzconnected.org/discussion/comment/269754#Comment_269754

yes. It’s common. Keep talking to her. She can hear you. 💜🙏

TMCMNJ · April 6

https://alzconnected.org/discussion/75428/hospice-burned-out

it’s the worst. I think that’s all I would (will?) want. Just someone to hold me. It must mean the world to her

Karen711 · April 6

Hang in there Big Papa! I hope you have someone around you who can give you support as you are showing up so amazingly for your dear wife. If not a relative or dear friend to bring you a meal or take a walk with you, hospice will have a chaplain that can meet with you regularly, and you may find some energy and comfort in that. Sending you a big hug!!!

💜

sherryandwilliam · April 7

https://alzconnected.org/discussion/75428/hospice-burned-out

it is the saddest hardest to see your spouse suffer for years. And the end stage is especially hard

sherryandwilliam · April 7

RetiredTeacher · 1:22PM

Sending hugs and prayers of support for you and your wife. It is the ultimate demonstration of love to be there for her throughout this journey. Know that this phase is likely harder on you than her. You bring her comfort, compassion and joy by showing up and holding her even though it's so hard on you. We are not that far along but I would hope that I could find the strength to show up every day, support my spouse with unconditional love all the while knowing it's tearing me up inside. I hope you find the strength to keep showing up, holding her tight and lean on your faith. Stay strong, praying for you.

Hospice/burned out.

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