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Is it time?

I've been caring for my LO for 3 years. His progression is getting worse. I was not prepared for this, nor what is to come. Incontinence and it's a battle to get him changed. Showers are hard. Relieving himself outside of the bathroom. Wanders at night, gathering items, hiding items. He is not aggressive or combative at all. Hiring a caregiver a few days a week for a few hours a day doesn't cover the majority of the day, as things happen outside the realm of the CG. Is MC facility a possibility? Family/friends think it may be a positive thing, especially for socializing and activity. As LO mainly just wanders around house and watches TV. He doesn't engage in games, walking is at a slow pace. There are no local Adult Day Cares (especially if they have bathroom problems).

I feel i'm being selfish thinking of FT MC.

Comments

  • White Crane
    White Crane Member Posts: 1,154
    Ninth Anniversary 1000 Comments 500 Care Reactions 250 Likes
    Member

    58 penguin, like Cindy said, you’re not being selfish. Most of us fully intend to keep our loved one home for the duration, but it isn’t always possible. Two years ago, I was asking the same question that you are. Is it time? In my heart I knew it was, but it’s not an easy decision. My husband has been in memory care for two years and I know it was the right thing to do. He is being well taken care of. If you haven’t done so already, visit the memory care facilities in your area and see what each of them has to offer. Then you can make an informed decision. Sending hugs.

  • Dio
    Dio Member Posts: 908
    250 Likes 250 Care Reactions 500 Comments Third Anniversary
    Member

    If you ask, then it's time. And it's not selfish. You need to safeguard yourself first and foremost before you can provide proper care for him. Just find a good facility that meets your requirements.

  • annie51
    annie51 Member Posts: 602
    500 Likes 500 Care Reactions 500 Comments 100 Insightfuls Reactions
    Member

    I went through the same thought process as you did - and the same guilty feeling. There’s just no way around it. I knew in my heart it was time, my friends told me it was past time (they were getting worried about me), and after talking to some other spouses with LO’s at the memory care of my choice, I made the call. It was extremely hard but I was comfortable with my decision after a few weeks. This is a very personal decision. As White Crane said, check out facilities and get references (other spouses) to talk to, so you’re at least prepared with a first choice. Sending hugs…it’s a hard one but we’re here to support you.

  • SDianeL
    SDianeL Member Posts: 3,155
    1,500 Likes 1,000 Insightfuls Reactions 2500 Comments 1,000 Care Reactions
    Member

    you are doing this FOR him, not TO him. You will still be his primary caregiver just in another role. Dont feel guilty. Your goal is to keep him safe and make sure he is well cared for. We’re here for you. Hugs. 💜

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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