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Doesn't know who I am

When I went to bed last night Doug asked me what my name was. God I hate this disease. It's like death from a thousand cuts.

Comments

  • Dusty217
    Dusty217 Member Posts: 39
    25 Care Reactions 10 Comments 5 Insightfuls Reactions 5 Likes
    Member

    Thank you, so well said. My DH and I met in our 50's and this is both our second marriages. My biggest fear is how soon he will forget me. We both have a deep love for each other and feel we were met to meet. This gives me hope his heart will remember me. And I feel this to be true now that you express it so beautifully. My mom had AD and near the end was nonverbal and seemed to know no one. She would however grin and squeeze my hands when I visited her. She knew me until the end.

  • howhale
    howhale Member Posts: 275
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    Member

    Trust that his love is in there, in his heart, and if you are open to finding his means of communicating, he will let you know. When I questioned if what I thought I was seeing was really so, on a very few occasions my DW would muster all of her energy for just a moment and look at me and say "thank you for taking good care of me" and then recede back into silence. It was then that I knew her heart was always open even as her mind shut down and it gave me strength to continue.

  • White Crane
    White Crane Member Posts: 1,158
    Ninth Anniversary 1000 Comments 500 Care Reactions 250 Likes
    Member

    My DH has not known my name for several years but he knows I’m his wife.

  • trottingalong
    trottingalong Member Posts: 964
    Ninth Anniversary 500 Care Reactions 500 Likes 250 Insightfuls Reactions
    Member

    For now at least, my husband knows who I am. I will remember your words and advice when that time arrives. Beautifully written. Thank you for continuing to help all of us still on this journey. You are appreciated.

  • Chance Rider
    Chance Rider Member Posts: 267
    250 Care Reactions 250 Likes 100 Comments 25 Insightfuls Reactions
    Member

    Yesterday my husband called me “Evie” for the first time in over 26 years. My name is Eve, I’ve never used Evie. It made me wonder if it’s the beginning of not remembering my name, though he knows who I am. Time will tell if it’s a one-off or a new trait.

  • blacksparky
    blacksparky Member Posts: 212
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    Member

    One if the hardest emotional struggles I had was when my DW forgot my name and that we were married. It tore a piece of my heart out. When I finally came to the realization that this just part of the disease, I accepted it and then I told myself that I would be the best caregiver and take care of her. She may not remember my name but I know that she sees me as the person who takes care of her.

  • tonyac2
    tonyac2 Member Posts: 234
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    Member

    My DH rarely calls me by my name. It’s mom, mother, grandmother and sometimes grandpa. Occasionally he calls me by his x-wife’s name. Oddly enough, he never messes up the dog’s name. I’m not sure if he knows we’re married.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more