Have any questions about how to use the community? Check out the Help Discussion.

I Feel I’m loosing my mind…

HotMess101
HotMess101 Member Posts: 2
First Comment
Member
My aunt has dementia I care for her she has no kids. My mother just got diagnosed on top f this last week ( she’s in denial) I’m the only daughter I care for her as well . My husband is terminal ( multiple myeloma and chronic lymphocytic leukemia) I need advice , tips… ideas I’m in a whirlwind I can’t loose control I’ve always handled things but this is insanely crazy ! I know God has a sense of humor but really??? Please note use humor and always have to get through the rough patches in life. “ I swim don’t sink”

Comments

  • JulietteBee
    JulietteBee Member Posts: 430
    100 Insightfuls Reactions 100 Care Reactions 100 Likes 100 Comments
    Member

    @HotMess101, I know your God, personally. Yes, He does have a sense of humor. However, what I have learned about Him, firsthand, is that when I feel overwhelmed, He is already there to render aid or support. I am usually the one slow in getting the memo.

    You certainly have your hands full. My mom has vascular dementia AND Alzheimers. I starting coming to this forum in Dec. 2024. The collective hours of experience & knowledge this group has is part none. Come here frequently; to read, to vent, and in time, to offer support.

    First things first, make sure everyone makes you their Healthcare Surrogate & DPOA. Do not stop there! You need to make sure you file your own legal paperwork as well. Select someone to serve in those capacities for you.

    🩷❤️🩷❤️🙏🏽🙏🏽🙏🏽🩷❤️🩷❤️

  • HotMess101
    HotMess101 Member Posts: 2
    First Comment
    Member

    JulietteBee,

    All legal aspects have been addressed. I’m the captain of All three ships, needless to say this has stirred up controversy within family. All complain and have an opinion… yet none step up to the plate to assist . I’m diving deeper into his word n waiting for direction.

  • JulietteBee
    JulietteBee Member Posts: 430
    100 Insightfuls Reactions 100 Care Reactions 100 Likes 100 Comments
    Member

    There is a saying I've heard & have now accepted. "When God is all you have, you quickly find that God is all you really need."💯

    My dad died in 2011 and my only sibling died, 11 months later. Mom is currently on a new downward spiral, while I am having major exacerbation & remission of my own life threatening, genetic, disorder.💔

    I pray, daily, that I will be given extra time on the clock, so I can see my mom through this awful disease, to the end. If I take my last breath one minute after mom takes hers, I would be content.🩷

    I truly despise ppl who feel at liberty to intrude by expressing opinions, yet not feel at liberty to intrude and lend a helping hand. 😡

    Lamentations 3:37 offers me great comfort when I feel overwhelmed. Maybe it will do the same for you.🙏🏽

  • Quilting brings calm
    Quilting brings calm Member Posts: 3,117
    1,000 Likes 2500 Comments Fifth Anniversary 500 Insightfuls Reactions
    Member

    I don’t have advice yet, but I do have questions. Where are all three of them in relation to you( distance wise, I don’t need your city)? Do your aunt and mom live alone or in a group setting? How far along do you think they are? Do you try to work in addition to dealing with these three? Do you have children?

  • H1235
    H1235 Member Posts: 1,738
    500 Insightfuls Reactions 500 Likes 1000 Comments 250 Care Reactions
    Member

    Im so sorry you are going through this. I find it’s important to remind myself I have limits. You can only do so much! If your mom and your aunt are not already in a facility, then it’s time (preferably the same one and close to you). Take the time to create a folder or binder for each of them. Being organized will save you time and hopefully a bit of stress. I know this is easier said than done, but don’t give the complaints of difficult unhelpful siblings a second thought. This is often the time when the sibling relationship falls apart. My brother has done little to help, questioned everything I’ve done and just caused me so much stress. Sadly I don’t expect I will see or speak with him after mom has passed. Do whatever little things you can to make your life simpler. Hire someone to mow the lawn, have groceries delivered, pick up dinner on the way home and don’t feel guilty for not cooking. Make sure to talk with your doctor or a counselor. I absolutely hated the idea of taking anxiety medication, but I feel so much better now.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more