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Welcome to the Alz extended family! You absolutely are not alone here. The changes your LO goes through with Alzheimer's or related afflictions is perplexing at best. As Sam Jackson says in Jurassic Park - "Hold on to your butts". That's what it feels like - a ride through a park, marked by moments of terror and not know what to do. Hang in there…
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my LO has not remembered people for months- maybe 6. It is very sad, but even sadder is that now he doesn’t know who I am. That is a crushing development . I am in the process of getting my LO into an adult daycare. It is just too much for me to handle alone. Our daughter lives in the state of Washington, so besides my sisters, I am alone for his care. 😢
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I often feel alone even though I have family around me. My DH was diagnosed with Alzheimer’s dementia two years ago and it was 1 year after the death of my mom from dementia. Having recently watched my mom go through it and now my husband is just so hard. There are similarities and differences in how it affected them. One thing is my husband has more anger and frustration than my mom did. He is sometimes reacting to things I say in an angry manner even when there is no need for anger. It increases my loneliness because it is so hard to have the person that was your friend and partner acting so out of character. I miss what we had and try to find joy in things as much as possible.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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