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New to this and seeking guidance
I’m new to this whole world and the challenges it presents! Mom is showing many signs of Dementia/Alz and in the process of additional health tests. No official diagnosis, no cognitive testing. Limited healthcare in the area and PCP is generalist. We are trying to get her to Geriatric Dr in a few months tho haven’t brought…
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New to the group
Hi to all of you. I just stumbled onto this site. I don't know if it's normal to have a dramatic turn in abilities or memory or if it comes and goes quickly? My FIL started down this road last December. He has bouts of not knowing how old he is. He's 77 and he thinks he is 20 then 30 then 50. He has always worked right up…
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Phantom smells
I’m 63 and have had phantom smells for almost 2 years. My primary care doc dismissed them 1+ years ago as Covid-related. Since then I’ve begun having memory problems, definitely a personality change (much crying/depression), and difficulty problem-solving. My mom had EO and my dad some form of dementia. I had a PET scan…
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Specific delusion help
Hi all, My 88yo Dad has mid- to late- stage mixed Alz/vascular dementia and lives in memory care. I did read some other threads here on delusions and got the basics down. For about a week now he has a delusion: he is in a hotel in Houston (Texas), a medical conference has just finished, and he needs to get back to Wichita…
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A few days ago things were manageable, but then the wheels fell off
My DH has had Lewy Body dementia for 4 years now. He is 85, I'm 75. Up until just recently, we've been doing pretty well. I was even able to leave him at home alone while I work (just 3-4 hours a day in the morning). A few days ago, it was like someone pulled a switch. He has always been very verbal, but now won't stop…
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Mother causing herself ulcers yelling at my dad every day
My mom is at the stage where she is having delusions of my father cheating on her. The only new memories she seems to hold onto these days are the ones she's made up or if something happened that made her angry. He is her primary caregiver and all she does is screen at him all day that he's a horrible husband and doesn't…
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Parallel living
Not sure how else to describe this but DH constantly refers to our "Other house"? Which he says is identical to this one, but he wants to take his belongings there. I'm continually putting things in our car for the "morning" to be taken there. After he goes to bed I take them out of the car and put them away. Sometimes…
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Paranoia/Delusions While On Donezepil and Now Memantine?
Hi, all, Long story short, my mom took Donezepil and Sertraline for about a month earlier this year. Her cognitive abilities improved, and we were psyched. And then…she started having paranoia and delusions, nightmares, and something like a psychotic break happened. Her doctors didn't think that Donezepil was the cause,…
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Hallucinations Delusions that won’t stop
Hi My Mother in Law was diagnosed with Alzheimer’s 6 years ago and has been experiencing auditory hallucinations for the last 2 years. In the past 6 months they’ve turned into full on delusions that are continuous and is afraid. She asked to be with us for the last 2 weeks because “they” (an 85 yo upstairs neighbor)…
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Delusions have started for my PWD and I feel lost
Hi, I am the grand daughter and I help give care to my PWD. She has mid stage altzeimers dementia.I've noticed she's started to remeber false memories that didn't happen. She's started to see "animals" that aren't there. this is new. I've noticed this within the last month. How do I go about handling this? What should my…
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The Fall
Probably the worst situation possible…91 year old with Alzheimer's now with a broken femur… http://simplebender.com/2024/08/17/joy-in-alzheimers-episode-47-the-fall/
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We need help!
My husband and his siblings are struggling to get their mother into assisted living. Doctors have been ZERO help with diagnoses and claim she has memory loss due to old age. She has presented well at her last 2 appointments. However we get 5-10 calls daily because of numerous things. (Lost her keys, lost her purse, cant…
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Losing my mom...
Hello. I'm 100% new around these parts, but I was encouraged by the counselor I spoke with at the Alzheimer's Association to post my story here in search of those with shared experiences. I (53) live in Texas with my wife, and my mom (83) lives in Miami, FL. Since moving to Texas in late 2012, I've traveled back to Miami…
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Traveling with AD, asking for help, lonely journey, how to cope?
Hi, I am new to this group. I am actively looking for help now. For the past 6 months, I have been struggling to care for my partner who is in moderate stage AD. Prior to that I was caring for her, but I was not so stressed about it. We are on a vacation now out of state after staying home for about one year, since the…
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Seroquel
Anyone have experience with how long Seroquel will help with hallucinations and delusions? DH has been on it now for about 2 months and it has worked great with hallucinations but he is beginning to have them again. I’m almost at max dosage for him (can still add half a pill or 25mgs). I really don’t like how it makes him…
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Anyone have experience with BOTH parents at once?
My folks are 83 and 80, living together in their home. Dad was formally dx'd in 2022, after periodic hallucinations that there were 3 versions of my mother; he also had some aphasia but was sharp in other ways. Neurologist prescribed Aricept and it has helped a little. Mom has had mild cognitive decline for years, but it…
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Alzheimer's/Alcohol Dementia, Alcoholism, Hoarding and Medication Refusal - what to do?
Hello, My mom has been a lifelong alcoholic who has refused most medical care in her life. She lost her home, was asked to leave her independent living situation due to hoarding, and she is in assisted living now for the last week but seems to have declined. She is physically weak, uses a walker, and is essentially blind…
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POA and Uncle who is mad and is threatening to change it
Hi everyone. My sister and I are new to taking care of our Uncle who has dementia. My Aunt (his wife of 70 years) died last year. We have started seeing that he is declining. He says he has a million dollars in a bank that consumers can't even have accounts, he just went out and bought a brand NEW truck for 65k in cash and…
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Dad will not acknowledge anything from the doctor
Hello, I am 37 years old, and I am trying to navigate this awful disease with my father.We are based out of California. He is 72, and he has put himself into a lot of danger (financially and physically). Some of our neighbors have called APS on him, but the neurologist says he is fully capable of making his own decisions.…
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Highly Paranoid MIL Refuses Help
New here, big venting coming up. Sorry and thanks: My 92yr old MIL has been getting consistently more symptomatic over the past few months. Her PCP called it "age-related dementia" and left it at that. She has since come to state that she's never visited that doctor (she was actually a patient for nearly two years) and is…
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Memory care fears
I have had my stage 6 DH on waiting lists for two small residential memory care homes. I just got word that one of them is likely to have an opening in two months or so. Immediately my fears skyrocketed about whether my husband will think I have betrayed him when I have him move. He is cognizant in the moment but doesn't…
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Setting my expectations for symptom relief from medicines
My DH is in early stage 6 Alzheimer's. He has been being treated by a new neurologist for the last six weeks to try to find a combination of prescription medicines that can alleviate his agitation, delusions, and angry outbursts. The doctor has several decades of experience treating people with dementia. So far the…
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Mother gave my brother and sister-in-law POA and all legal powers but they don’t want to do anything
Hello all- I am new to this community. My mother is in the process of her diagnosis and it has been hell. She has been diagnosed with “Mild Cognitive Impairment” but the MRI shows severe damages from silent strokes. She failed her driver license exam because of 4 critical driving errors (1 CDE disqualifies you). She has…
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Grandpa’s phone calls
Hi everyone, I’m new here and seeking some advice. I have just recently learned that my grandpa has dementia. He still lives independently and I was unaware of his condition until now because my uncle didn’t tell me — all of my conversations with him had seemed normal until this weekend. For the past few days, he has been…
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My Mean Mom Doesn’t Want to be here
My 83 yo mom has had signs of dementia going on 10 years. She was officially diagnosed last year. Why so long? My brother couldn’t fit into his schedule to get her examined during the last 5 years she lived with him. Prior to that we weren’t really sure it was dementia, she was still reasonably normal just lost things…
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Need to see Neurologist
Hey all, Dad is showing an uptick in hallucinations/paranoia and delusions. He lives on a memory care floor of a healthcare community. He was seen by the Nurse Practitioner with the physchiatry group last week and started a new med, seroquel. I have requested a urine catch to check for UTI. The floor RN suggested I take…
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desperate to help uncooperative mom
My mom is living in a different state alone. Over the past year she has let her life and responsibilities unravel. She has harrassed the banks to where they close her account, forgets to pay bills and now is delusional and hallucinates about a man living in her apartment. She calls the police over and over. I called…
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Delusions that are scary
Hello all, This is my first post and I look forward to learning from you all! My father lives in a memory care community and has advanced small vessel disease diagnosed via MRI with advanced dementia. We moved him in over the summer on level 1 care, he is now at level 2 and has moved once within the facility. He no longer…
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New… Dealing with Mom’s Hallucinations
My mom is in her 60s and her pcp says she is having brain slips and in stages of dementia. I am trying to get her seen by a neurologist and someone recently recommended a geriatric psychiatrist as an alternative for an assessment. It has been 3 months since the diagnosis and she was given an antidepressant. She is now…